There are a ton of us here in Calgary, I am afraid. I remember feeling much like you say you do now. Took them a long time to diagnose MS, they said it was transverse myelitis at first.
Honestly, you will start to feel less afraid, but it takes us all different amounts of time and experiences to discover our new "normal"
Kathy, 49 with PPMS,full time scooter.
Married to a wonderful man, mother to a darling 9 yr old boy