So the Avonex didn't work, and now the copaxone doesn't seem to do much either. Was just working up the nerve to try Tysabri, but figured I'd take advantage of a JC virus test through a trial, to be more confident about NOT DYING from PML. Today's news: JC positive. So now I wait for a useful (and not deadly) pill to hit the market.
The good news? I am at work, and never miss a full day due to MS. I can still get from point A to B on these legs, over the quicksand and the invisible sinkholes that form only for my right foot. I can still pick up my daughter for a hug and chase her bike when I am afraid she is losing control of it. I can still laugh and love and live with my wife. I can still take care of myself and my family. I can still cook and then clean the kitchen afterward, (but not immediately after.) NO sexual dysfunction!
And this all is NOT CANCER. I do not have to wonder if I will be here in 10 yrs (b/c of MS), just whether I will be able to dance. Finally, it has not turned my attention inward- I continue to focus my life on helping others. And still get to see people of all stripes in much worse situations than mine, every day. Perspective is the gift that allows me to live with this crappy disease.
Jeff in North Carolina, USA