I just happened upon this forum while looking up MS experiences...
I'm looking forward to meeting you all. Here is my story: I'm a 29y/o female from New Orleans, LA. I've been living w/MS since 1997. I was only 16 when I was diagnosed. I've only recently started taking meds (started Rebif in April) for it. Since I was so young when they diagnosed me, I declined treatment initially due to the outrageous cost. They docs wanted to put me on Copaxone, but I also didnt want to get shots daily. I developed a profound distrust for doctors in general, but especially neurologists after being treated like a guinnea pig (spinal taps, MRIs, having needles stuck in me and the doc runs elecrtical current thru them... OUCH!) at such a young age. I stayed away from the docs and the meds for 13 years with relatively little issues, until recently. I had relapses of optic neuritis every year or so, but it didnt bother me too much since it went away after some time. I had a particularly disabling relapse in January of this year and it was kind of a wake-up call. I had a change of heart about the neuros and the treatments
and have decided to be aggressive in fighting this illness, even though it means getting shots 3 times a week, getting MRIs, and dealing with neurologists on a regular basis.
I would like to urge anyone with MS to keep on FIGHTING and NEVER GIVE UP! The human body is an amazing creation. Each and every one of us has the power to heal. A positive mental attitude is the key. You have to believe in your ability to conquer this illness. Though willpower, HEALTH will prevail!
I'm looking forward to getting to know you all,