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Hello - New Member

Postby ybt » Wed Sep 01, 2010 1:54 pm

Hi, my name is Julie. I live in central Ontario, Canada. I have RRMS and was diagnosed in 1991. Most days I consider myself very lucky. Other days of course I am feeling sorry for myself. I found this site when researching Copaxone injection reactions. So far it seems to be very informative and the members very helpful to each other.
Monday night I gave myself my injection as usual. Right away I said to my husband, “Wow this one is going to be itchy”. That was an understatement! Within 2-5 minutes I was covered in hives. My breathing was laboured and my back, shoulder and chest muscles felt like they were being painfully squashed. Not right away but within 15 minutes I also felt very nauseated and my tongue seemed thick. Although it did not appear so. It was 3 hours before the symptoms subsided enough that I could go to sleep.
The next day I went to see my GP and was told that I had an allergic reaction and that I should have probably went to the hospital. Also stop the injections at once. I am now waiting for an appointment with my neurologist.
After doing some internet research I think that I have been having an adverse reaction to copaxone for quite some time. For about the last year I have been complaining about neck and back pain. Also have had the feeling of someone sitting on my chest and that I can’t get enough air. I complained of this many times to the doctor. I have had blood work, ECG, ultrasounds etc...could never find anything wrong. So of course it was chalked up to MS symptoms. Now after reading some other people’s stories I am not sure that this has not been caused by copaxone?

I have lived with MS since before 1991 and am still walking, slowly but walking. I have bladder and bowel issues and of course fatigue. Optic Neuritis and went blind in my right eye for a short time. There are of course a multitude of other symptoms that come and go. However for the most part I believe that I am doing fairly well for having MS for so long. It is just that general all around I feel like crap that gets to me after a while. Now this copaxone reaction and to realize that it has maybe been the culprit all this time makes me really upset.
I am hoping that now that I have stopped the injections I may feel actually better. Although I do have the fear that even though my body wants to reject something in the copaxone, is it what has been keeping the major relapses under control.
MS is so confusing sometime.......
Thanks for listening  .
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ybt
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Location: Ontario, Canada

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Postby ppicklee » Wed Sep 01, 2010 3:22 pm

Welcome ybt! Nice to have you. Really nice to see another Canadian. Me too! Winnipeg. I was diagnosed in 1993. Now I'm PPMS. So you got the good end of the stick :-). Just joking around. It's true... sometimes this just does suck more than other times. You sound like you have had quite the run in with Copaxone. I don't take any injectables so you will have to check the other parts in this forum that will/can help you. Again... welcome!
p
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Postby L » Thu Sep 02, 2010 3:32 pm

Hiya
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Postby Mirry » Thu Sep 02, 2010 5:08 pm

Hi Julie

Welcome to the site. I am a newbie and so am in learning mode right now and this is definitely a great place to be for that.

My specialist wants me to start Copaxone and they keep calling me from the company asking when the nurse can come over. I had to tell them to slow down, they were moving far too quick for me and until I was happy with that course of action and reviewed all my results I didn't want to do anything.

Ooh look what arrived in the mail, a nice new shiny auto injector ..... :lol:

Do you use the auto injector? I have read mixed reviews about it and one poster said they changed to regular injections and did it that way.


Mirry
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Postby ybt » Thu Sep 02, 2010 5:52 pm

Hi Mirry...

I took copaxone for over 5 years with little problems until recently.
I always used the injector and got small lumps and bruises.
Nothing to really complain about. Can't say if it is better not
to use it as I have never done that.

Good luck with the copaxone!
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ybt
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Location: Ontario, Canada


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