I have just joined following my first clinical event that occurred last month with a bout of acute optic neuritis that I am still recovering from.
My first symptoms occured last summer when I was living in the UK. I had pins and needles in my feet. I visited my GP who told me it was chronic hyperventilation.
Moved to Saudi Arabia in early October. In mid November developed a distinct left sided head ache. My vision in the left eye blurred. I flew back to the UK for a 6 days and a couple of days later visited Addenbrookes Hospital in Cambridge. My treatment by those No Hope Service quacks was truely abysmal. For me I was fortunate enough to be able to fly back to KSA and get proper treatment. I really do feel for anyone at the mercy of the NHS - in my experience it really is 3rd World.
I was immediately diagnosed with Optic Neuritis and put on IV steroids. Next day MRI scan showed a very small white matter lesion. The Neurologist decided to put me on Interferon 3 x per week.
The neuritis is a lot better although still fluctuating a month on from initial onset. I have some minor symptoms - pins and needles in feet and occasionally other parts of the body. Occasionally get electrical sensations in my foot and arms.
Not formally diagnosed as having MS yet but anticipate it is only a matter of time.
My current regimen is;
1000mg of D3 per day plus daily sunshine exposure
Oily fish consumed every day for Vit D, Omega 3 and purine content
Avocado and olive oil daily for oleic acid
Multivitamin / cod liver oil on alternate days
Beans and pulses for purines.
Going to start Hookworm therapy in early February. I have seen the University of Nottingham Clinical trial but decided best to start now rather than wait for the results in 2012.
I work in a Health Clinic so trying to peruade one of the nurses to give me the BCG vaccine.
Also thinking about getting the CCSVI screen done.
Anticipating a long hard road ahead