Just wanted to say hello. New here. Started my trip into MS in July of 09. I did have steroid treatments because I was having issues with the side of my face and tongue. I had one lesion on my brain stem and one on my brain. After finding a new doc, did not like the one I initially had, I waited 6 months for another MRI and had 4 more lesions. I was given all the info for the meds and told to make a choice. I also have had some balance therapy after an ENT ruled out an problems with my ears.
After doing some searching on the web I found out about about a clinical trial for helminths at the MS clinic I was going to. I signed up after a lot of discussion with my reg neuro, my family, my reg doc and Dr. Fleming, the doc running the clicical trial. Which I was amazed to find from my family doc that her father has MS and doctor Fleming is his neuro.
So I am through the observation period, MRIs, blood test, exams, stools samples, I am now going to begin treatment in January. I am so hopeful about this and feel that I made the right choice for me.
I am so blessed to have a fantastic husband that supports me in this and has been a rock during my roller coaster ride. I don't know what I will do after the trial. I will cross that bridge when I come to it.
I will be posting my progress. The study is blinded so I won't know the exact results for over a year but I am hoping of course that I will notice the difference physically.