I thought it went away forever

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I thought it went away forever

Postby Kiki » Sat Jan 15, 2011 10:43 am

Like the title says I thought my MS was gone forever foolishly. Than about 4 years ago after 15 years of denial, I begin having petit mal seizures and this problem progressed into petit mal seizures. I finally went in and saw a new Nuero and gave me the MRI and said that I had serveral lesions on my brain but there is one that is large. I remember asking the nuero how big is LARGE, and why am I having seizures with MS? I am not supposed to drive anymore, I have to be seizure free six months. I tried to find my old nuero to get my old MRI's, but have not been lucky with that task. I have to have another MRI Feb and the nuero said he just wants to make sure this doesn't get worse, bigger, and said we would use more agressive treatments than the beterson I have started on. I took betaseron when it was on a lottery program, years ago and stopped it since I felt ok, maybe a mistake. I have been really sick with these seizures and personality changes, and I feel such anxiety, and for a while had this horrible pain and numbness on my left side, which I have been numb before but not with pain. This sucks, why can't I win the lottery for millions, instead of getting stuck with this?
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Postby ppicklee » Mon Jan 17, 2011 8:52 pm

Hello Kiki. I am sorry of I don't have any questions or answers for you. If it makes you feel any better (and I hope you can understand and laugh at this) we all wish we could win the lottery. It is very very possible to stay positive... sometimes it is hard... but possible. Hold on to that. Even in the crappiest times. I'm pulling for you. BTW... welcome!
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Postby koopico » Tue Jan 18, 2011 2:01 pm

Welcome, Kiki!
I can completely understand how you feel--this definitely sucks! And some of us (like myself) have other health issues as well--which makes dealing with MS even harder.

But PPicklee's right--try to stay as positive as you can. Difficult task, but worth the effort. I know how frustrated you must be, and I hope you get some relief and the answers you need soon. Hang in there, Kiki!
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Postby Lydia_S » Wed Jan 19, 2011 6:21 am

Hello Kiki!

I hope that there will be a time that you forget ms again. Until then try to be as informed as possible about the treatments.

Welcome :)
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