New here, not diagnosed yet, but two doctors suspect.

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New here, not diagnosed yet, but two doctors suspect.

Postby JohnBalnks » Sun Mar 06, 2011 11:20 pm

Hello all. Nice to see sites like this. As i stated I haven't been diagnosed yet. Actually they don't want to take it any farther until i get insurance stating if they did i would be barred from insurance for life (part time self employed) im on my way to getting insurance. But before i go any farther and since this is new to me i was hoping to get some opinions as to my probable MS symptoms. Recently which is what caused me to goto the doctor in the first place, i had my left eye start going hazy almost like a fog it got worse and worse to the point that i had double vision in it and then went blind from 30 feet or so out. closer up i could see in double and fog. It only lasted a little over an hour. One doctor said probable MS but most likely migraine that other stated the "fog or graying" is MS not migraine but the time limit was migraine. Then he started asking other questions. Then i noticed i have been having certain things happening for 5 or more years. One when i get to working real hard from my rib cage down to my feet i get these cold ice drop feelings. Not close together but spread apart a bit. I also get alot of muscle twitching or spasm in my right thigh and left arm one day for nearly 4 hours or so my left tricep kept jumping. sometimes my foot will just twitch for no reason usually when im laying still. My right thigh on the top will get random but brief cold chills same with the back of my neck and back of my head sometimes random areas. I get very very sharp pains in my head. One sided pains that seem to go through my eye and out the top of my head they last very brief like maybe 1 to 2 seconds leave for 5 to ten minutes and come back those come and go and when they come i have them for a few days my eye doctor stated it was from optic neuritis. as of tonight i have had a upper eyelid twitch for going on about 2 to 2 and a half weeks. it twitches so hard sometimes it closes about half way or more. random body pains and random numbness in hands and feet usually left hand. Recently been having skipped heart palpitations. Something i never thought about is i drop things alot i guess i went through 8 cell phones in 3 years using up my families early upgrades lol. And un steady on my feet i sometimes wobble when im backing up or make a turn and have to force balance but im not dizzy when that happens. And one of the worst feelings i have had which i can only remember of happening twice is. Its hard to explain i call it a brain reboot, its like a quick swoosh happening in my head and like my brain shuts down for a split second. After that happen those two times i felt like crap the rest of the day and remained slightly in a state of vertigo. I know its alot but most of the people here have probably have had to deal with MS for sometime, and could give me a good idea if the doctors guesses sound like MS or not with the problems i been having.. Thanks!!
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JohnBalnks
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Postby mrbarlow » Mon Mar 07, 2011 4:51 am

The symptoms you describe are very similar to my own. Following a bout of Optic neuritis and an MRI I have been diagnosed with Clinically isolated syndrome which will convert to RRMS in the event of another acute attack.

In view of what you describe I would advise as a precaution

Start taking high dose Vitamin D now. At least 2000iu and get plenty of sunshine too

Fish oil would be helpful

Adopt an MS friendly diet - plenty of oily fish, cruciforous vegetables, olive oil, nuts, fruit, liver if you can stomach it.

Consider Gingko Biloba supplements
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welcome...

Postby leetz » Mon Mar 07, 2011 8:20 pm

I am no Doctor, just wanted to welcome you...this site is very informative.

God Bless!
GOD BLESS.... CCSVI treatment Dr. Siskin great doc....symptom's improved for about 3 week's (gait, balance, spasticity) now back to square 1...
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Postby pokiedottie » Tue Mar 08, 2011 8:13 am

Like you I have not yet been diagnosed. I am in the process. My LP is scheduled for Monday. Have to have a friend take me as my husband is having problems with a kidney stone that will not pass. They can't break it either. So besides dealing with the MS question hanging over our heads. We have this problem as well.
I too have had those twitches but until I read your post didn't think about them as a MS symptom.
My optic neuritis hasn't improved. I am still 20/200 in my left eye. It's been 7 1/2 months since it hit. Although at it's worse I was completely blind in the left eye. Should be grateful for small blessings.
Hope everything goes well with the insurance. My husband and I are self employed so understand your situation.
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