This Is MS Multiple Sclerosis Community: Knowledge & Support

I just wanted to take moment and publicly thank two individuals for expanding my knowledge base and really opening my mind to CCSVI. I received a mailer about 6 months ago from Mr. X asking me to look into this procedure. I was curious but very skeptical. I did some preliminary learning and agreed to see a number of patients that had been previously treated on the East Coast for follow-up procedures here (Minneapolis).

I am still treating Mr. Y but frankly he has become more of a friend than a patient and I deeply appreciate HIS patience as I have come up to speed on this important advancement in MS therapy. After attending the Hubbard foundation meeting this past weekend and directly questioning Dr’s Hubbard and Dake, I am now personally convinced that this is a HUGE breakthrough in the treatment of MS.

There is a very large range of presentation of MS, and clearly the liberation procedure cannot be the right procedure for every patient, every time. However, given the high safety profile, and the surge of new promising data, I am confident that we will be able to establish the correct parameters and that this procedure will remain an important part of MS treatment for the foreseeable future.

As an Interventional Radiologist, I feel obligated and indeed honored to participate in this technology and research. MS has afflicted my own family and took the life of my best friend’s sister at 38. I can think of no better way to honor her memory than to pledge to do whatever I can to move this reserach forward.

Thank you Mr. X and Mr. Y. (you know who you are and HIPPA likely prevents me from even using your real initials). Without your persistence, I would still be in the dark.

Most Sincerely,

Gregory B. Snyder, MD DABR
Assistant Professor
Fellowship Director of Vascular and Interventional Radiology
University of Minnesota Hospital and Clinics
Minneapolis, MN

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Gregory B. Snyder, MD DABR Vascular and Interventional Radiology University of Minnesota Hospital & Clinics Mayo B-228C Mayo Memorial Building 420 Delaware Street SE Minneapolis, MN 55455 <br /><br />

Dr.Snyder thank you for getting involved & joining the forum. I look forward to following your experiences & input as you go forward in learning & treating us.

Welcome, Dr. Snyder,
so glad you were able to attend the Hubbard Foundation conference and question the doctors yourself. It was over two years ago I sent the Zamboni research to Dr. Dake and he agreed to look at my husband. We continue to encourage research into this connection. For more information regarding the nonprofit several of us started, go to www.ccsvi.org

With wishes for continued exploration and healing for your patients,
cheer

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Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

Welcome, Dr. Snyder! And let me add my thanks as well to Mr. X and Mr. Y. It takes just one patient (or two, in this case) to spread the knowledge and it brings us all closer to the day when this isn't controversial or new anymore but accepted standard medical practice.