Newly diagnosed with MS

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Newly diagnosed with MS

Postby Flora » Fri Jun 03, 2011 8:18 am

Hello everyone,

This is very hard for me , as I am sure it was for everyone else. I am a 40 year old mom of 2 wonderful young boys. I was diagnosed with MS, 2 days ago. At first, my neurosurgeon thought it was a tumor. A neurologist with bad bedside manners (laughed when he told me I that my MRI revealed a legion), refered me to my present neurosurgeon. I passed an MRI with infusion and this revealed 2 more white lesions. So now I have 3 in all. Thus, he disgnosed me with MS and now wants me to see a neurologist who specializes win MS.

Apparently, the lesion that was detected a few months ago on my first MRI has increased in size. This one is located in my left frontal lobe. But the other new ones are smaller (I forgot to ask him where they are located because I was in shock) and he said something about being in regression or remission (I admit I am unfamiliar with what that means). To add insult to injury, there is approximately a one year waiting period to see an MS neurologist.

I am freaking out to say the least. I don't know what to think or do. I am getting depressed as the days progress and my attempts to seek an MS neurologist (all over Montreal where I live) are greeted with the same outcome. No private neurologist here it seems. I have increased migrain headaches (which I have had since I was 17). Can migraines cause lesions ?

My symptoms began about 2 years ago when I would lose my balance, it lasted for 1 year and it went away. I recently went through a period of extreme psychological and emotional turmoil and have noticed that about 1 week ago today, (before my recent diagnoses) that my legs seems to vibrate (?) almost like a dull tremor. Is this normal ? Can this be linked to my recent emotional ordeal or can it be a symptom of MS ?

I appreciate sharing my story and I look forward in hearing from any of you. God bless !

PS. Are there any vitamins or supplements that can help MS ?

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Postby daverestonvirginia » Mon Jun 06, 2011 11:04 am

Welcome Flora, not a place you wanted to be I am sure. I was dx at 45 almost 5 years ago but I can still remember how hard it was at first. But the internet is great way to research and learn about all things MS. Take your time do some research, I think it will make you feel better.

I ended up going on Copaxone and the Best Bet Diet which includes vitamins and supplements. Five years and I am symptom free. I have never gone to a neurologist who specialises with MS. I also have two children and went on a 20 mile bike ride with them this past weekend.

I always think the bad thing about MS is it can end up doing just about anything which is also the good thing.
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