Hi All! I just need a little insight

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Hi All! I just need a little insight

Postby kibibikel » Tue Aug 02, 2011 12:43 pm

Hi everyone,

I'm really hoping to get a little insight into all this and see if anyone else has kind of been in the same boat as me at all. I have tried going through the forums a little bit and tried to get in contact with my local ms society chapter and am not having much luck so far. I know they say that everyone's experience with MS seems to be vastly different but mine seems a little crazy.

I woke up on April 1st (happy April fools lol )with numbness in my right leg and extreme sensitivity to cold. Went to the hospital and and MRI was ordered. Within a week and half I had my MRI and got word from my GP that until proven otherwise it was MS according to the MRI. This was the day before Good Friday. By this time the numbness had transferred up into my face and neck. At the beginning of May I started to lose my vision in both eyes and ended up in the ER again where they put me on a 3 day course of IV Solumedrol. Cleared up the numbness in my feet but my eyes were still shot.
June I got to see my neurologist for the first time and after looking at my MRI (which apparently lit up like a firecracker when they put the radioactive goo in me :lol: ) he said yes, you have MS. He ordered another round of IV Solumderol because my eyes had still not cleared up and also set me up to start taking copaxone. It seemed to fix things and then about two weeks later I started having pain in my eyes again, not anywhere near as bad as the time before but there none the less. Then another attack on my left leg of numbness and temperature sensitivity. Went back for my followup appointment and again I was put on a 3 day does of IV Solumedrol with a tapering dose of oral Prednesone. I just took my last dose today and about 3 days ago my right leg started to go again.
Sorry I know that that was a novel, but has anyone else experienced anything like that? Everyone that I have talked to says that they've had it for years and never would know the difference.
Thanks for any help! I really appreciate it!

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Postby CL » Tue Aug 02, 2011 8:52 pm

Ive kind of had an opposite experience as you....Im having severe symptoms ranging from numbness on my left side to extream pain in my arms and legs to blurred vision in my right eye but as of yet...no diagnosis. My first MRI was clean and so was my blood tests.

From what Ive seen of MS personally and everything Ive read about and talked about with my doctors....it sounds like what you've experienced is typical symptoms of MS....just quite pointed and severe. Which definitely happens. And definitely sounds like your doctors were quick to get you a diagnosis.
My adivce is to be your own advocate and really work with your doctors to get yourself the help you need. Do your research (which is sounds like your doing...contacting your local NMSS) and become educated in this so you know what your dealing with.
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