....We are unique individuals with different experiences and different ideas on this MS disease.
For the moment, take a deep breath, count your blessings including a supportive fiancé, assemble a medical team of doctors (GP, neurologist, etc.) you trust and can work with. Start your own file of copies of medical test results and read, read, read.
Lhermitte's sign, sometimes called the Barber Chair phenomenon, is an electrical sensation that runs down the back and into the limbs. In many patients, it is elicited by bending the head forward. It can also be evoked when a practitioner pounds on the posterior cervical spine while the neck is flexed; this is caused by involvement of the posterior columns. Lhermitte's sign is named for Jacques Jean Lhermitte, a French neurologist and neuropsychiatrist. Thus it is incorrect to spell the term as "L'hermitte's sign".
The sign suggests a lesion of the dorsal columns of the cervical cord or of the caudal medulla. Although often considered a classic finding in multiple sclerosis, it can be caused by a number of conditions, including transverse myelitis, Behçet's disease, trauma, radiation myelopathy, vitamin B12 deficiency (subacute combined degeneration), and compression of the spinal cord in the neck from any cause such as cervical spondylosis, disc herniation, tumor, and Arnold-Chiari malformation. Lhermitte's Sign may also appear during or following high dose chemotherapy.
I am sure you had been reading in an MS Society publication; that group is a STRONG proponent of the DMDs (Disease-Modifying Drugs). You will find a few of us here who used these drugs for many years and whose condition continued to deteriorate in spite of them. Consequently, I chose to discontinue them long ago. MY personal opinion is that effective treatment can only be developed after researchers understand the disease and learn the cause of it (and the cause is still unknown!).I've also read that the best thing a person with MS can do is get treatment as early as possible.
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