Wave-like symptoms in head...

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Re: Wave-like symptoms in head...

Postby BlaineM » Sat Sep 23, 2017 10:45 am

Hello Cathy, I too am new to here, I was just diagnosed last week. I have a sensation like someone is holding a wet ice bag on the right side of my face, is totally random, comes and goes. The very little I know is that it manifests itself many different ways in many different people. Kind of the more I know the more i know I don't know. :-D That sensation led me to a neurologist that led to a MRI that led to a spinal tap to diagnosis. We are presently exploring different treatment options that led me here. Best wishes.
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Joined: Sat Sep 23, 2017 10:15 am


Re: Wave-like symptoms in head...

Postby Unemployed » Sun Nov 12, 2017 7:01 am

THANK you. I am undiagnosed for 8 years of seeing doctor but probably more. I have had the wave for years. The first time I mentioned it to my doctor he brushed me off, as it became more pronounced over the years with other symptoms he told me the wave is not part of MS or PD but I was sent to third neurologist who said anything is possible. All symptoms point to MS but tests over years always come back negative. The wave is still here and it is damn scary
Posts: 3
Joined: Sun Nov 12, 2017 6:52 am

Re: Wave-like symptoms in head...

Postby wilko » Tue Feb 13, 2018 4:14 pm

Hi, I know this is an old thread but I am just wondering if there was a diagnosis as I have been having the same - basically if I am sat down on setee or lying in bed, so not anxious, probably more lethargic to be honest, then a wave comes over me, sometimes just in my head but mainly other times from my body up to my head, the mild ones I don't bother about now but the big ones can make me bolt up/sit up and worry what they are, it's almost like the big waves are trying to make me drowsy, knock me out or something like that.
Anyway - Hello I am new :) but any useful feedback on what it may be would be appreciated.
Posts: 1
Joined: Sun Feb 11, 2018 1:21 pm


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