Wave-like symptoms in head...

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Wave-like symptoms in head...

Postby cathylt » Sun Mar 11, 2012 2:31 pm

Hi Everyone. I'm new on here so hope I'm doing this right. I'm wondering if anyone else gets the same type thing I do. The only way to describe it is it feels like a wave is going through my brain and I'll get one after another. It doesn't hurt - just a weird sensation. It takes a lot out of me and for some reason it is hard to keep my eyes open with they are intense. They can be very disabling. My neuro doesn't know what they are and hadn't heard of them, but a nurse my husband knows said she had seen some MS patients over the years describe the same type thing. Anybody out there get something like this? If so, have they found out what it is or what to do for it? Wishing you all well....Cathy :-D
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Re: Wave-like symptoms in head...

Postby DougL » Mon Mar 12, 2012 4:54 am

hi Cathy. welcome to TIMS.

sorry i can't help with your question but i will ask my partner if she feels what you descibe.

i have a question for you. you said it feels like one wave after another. does the timing of waves going thru your brain match the beating of your heart?

when i have a bad pressure headache, each heartbeat causes the pressure (and thus the pain) to be worse. now that i think about it, it could feel like waves. i know its not what you feel but its as close as i can get.

i hope you get some answers
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Re: Wave-like symptoms in head...

Postby Quest56 » Mon Mar 12, 2012 9:34 am

This is something I used to feel when I was younger, in my late teens and early 20s, the sensation has not occurred now for many years. I am in my mid-50s.

You describe it very well, a sensation like a wave or subtle movement of my brain within my head, without pain. In my case, the wave-like sensations were most always disjointed, and never lasted longer than a few seconds.

Back then, I also used to get classic migraines preceded by a visual aura or tingling in my lips or fingers. I now tend to get cluster headaches, with no aura. I take medication that works very well to prevent them.

That was years before I was diagnosed with MS, I have no idea if there was a relation.

The doctors I spoke to about the sensation back then never had any idea what it was. One suggested that it might be a very mild form of seizure.

--Tracy
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Stent in left and right IJVs
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Re: Wave-like symptoms in head...

Postby cathylt » Mon Mar 12, 2012 9:48 am

Thank you Doug and Tracy for your replies.

Tracy mine started out being only a few seconds long and only once or twice a month. I am now getting them much more frequently. My last bout with them lasted 10 days, with waves 7 or 8 hrs each day. I see you have had the liberation treatment - how did it work out for you?

Doug I don't think they match my heart beat - never thought about it actually. I think they are slower than that but next time I have it I will check it out.

Thanks again for your replies. Be well.

Cathy
SPMS
Diagnosed Aug/06
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Re: Wave-like symptoms in head...

Postby DougL » Mon Mar 12, 2012 10:04 am

this quote is what i was thinking about when i said matching your heart (and not saying it very good LOL):

My 'waves' went right to left and were associated with very low blood volume - basically not getting enough blood flowing through my veins so that each new beat of my heart was pushing a 'wave' instead of simply helping a steady flow.




everytime i hear things like you posted Cathy it screams CCSVI to me.
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Re: Wave-like symptoms in head...

Postby cathylt » Mon Mar 12, 2012 10:16 am

Thanks Doug - interesting idea and maybe it does have something to do with the blood flow. Mine tend to go from the back to front but probably doesn't matter which way they go.
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Re: Wave-like symptoms in head...

Postby littlered13 » Mon Jun 11, 2012 9:02 pm

I have experienced this a few times. Sometimes it is when I am sitting down, other times when I am walking. I have brought this up to my Neuro. The only thing he could tell me is that it is from the lesions in my brain. He didn't say anything about a mini seizure or anything like that (not to say that isn't true).
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Re: Wave-like symptoms in head...

Postby rblaine67 » Sat Sep 12, 2015 2:03 pm

Hello, my name is Romona, and this is the first time I have felt this strange wave like sensation in my head going ffrom ear to ear with tense pressure as well, which makes you feel out of sorts, I have been trying to explain it, but it is difficult, I told my husband it feels like my equilibrium is off, when it happens all I can do is close my eyes and hold my head until it's over, there's no specific time when it happens I can be walking, sitting or even laying down resting. When I stand up and I'm walking around I'm dizzy and feel off balanced, and yes I am nauseated, this is something new that I have never experienced and I went to the E.R last night, they say it's migraines, but it's so very different from any migraine I have ever had, and I have been having them since I was a child and I'm in my 40's now, so this is a little scary, so if someone has any information please advise.

Thanks in advance Rblain67
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Re: Wave-like symptoms in head...

Postby Scott1 » Sun Sep 13, 2015 4:22 am

Hi,

I'm going back a long way here to bring this up but I had similar attacks before I was diagnosed. At the same time I also felt I moved more slowly than I should have and was more tired than I should have been. It would not last long and then seem to resolve itself. I later found problems looking at groups of people that I was walking towards- they appeared to shudder. I thought I was a bit mental and must have developed a dislike of crowds. It was my eyeballs moving at different speeds. The reality was I wasn't diagnosed and had no strategy to avoid slowly declining.
What you're experiencing might be just a little warning that you should start looking for coincident symptoms like fatigue and looking at strategies to improve your health.
There is no end of ideas about MS attacks and how to manage them.
My ideas are here - regimens-f22/topic24019.html so I wont repeat them.

If this is your only symptom, then with benefit of two decades experiences I would do the following-
1) always go to bed at the same time even if you're not tired (you can read)
2) Take at least 300mg of Coenzyme Q10 before bed
3) Consider reading a lot more about the sort of stuff I and others write about as you will need to learn the language (gets easier)
4) Review the usefulness of the medications you take
5) Consider what other people have found useful
6) Ask a forum like this a lot of questions

Regards
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