Diagnosed Today

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Diagnosed Today

Postby vcpete38 » Tue Mar 13, 2012 7:34 pm

After winding up in the hospital for four days the first week of February with optic neuritis, I was diagnosed with RRMS today. My brain MRI was clear but I have 2 lesions on my spine. My neurologist was just waiting for my spinal fluid to come back from the Mayo Clinic and it came back with all of the markers for MS.

I can't say I'm shocked at the diagnosis because when I was discharged from the hospital, it looked like they were leaning toward MS. It also explains some things that have been happening with my body over the past few years. I'm really thankful to the opthamologist who sent me to Duke University Hospital right away to see neuro opthamologist. It seems from a number of the posts on there that a lot of people aren't able to get such a quick diagnosis, or even get in to see a neurologist that quickly. It's been only 5 weeks and the vision in my right eye is back to about 100% already. The doc gave me a prescription for some Gabapentin and I'll be going on Copaxone as soon as I am contacted to learn how to do the injections. I look forward to learning more about MS and everyone's experiences.

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Re: Diagnosed Today

Postby want2bike » Wed Mar 14, 2012 4:22 am

Check out the diet section.
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Re: Diagnosed Today

Postby vcpete38 » Mon Mar 19, 2012 4:56 am

Thanks, will do! :)
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Re: Diagnosed Today

Postby Rose99 » Mon Mar 19, 2012 7:28 am

Hi Vicki,

You were lucky to get diagnosed so quickly and it really is a blessing as hopefully you have caught it early and with on going treatment will not have too many relapses if any at all!

Good luck with the Copaxone, i hope it goes well

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Re: Diagnosed Today

Postby jimmylegs » Mon Mar 19, 2012 7:45 am

heya! welcome to the forum.

odd dx, spine only... did they rule out b12 deficiency?

also the spinal fluid tests are markers of chronic inflammation. there's great info out there on inflammation factors in foods. it's surprising sometimes which foods contribute to inflammation. nutritiondata.com has excellent info charts on many different foods.

http://neuropathology-web.org/chapter14 ... 14CSF.html
"In multiple sclerosis, CSF protein is normal or mildly increased, but there is often an elevation of IgG in CSF, but not in serum, expressed as an elevation of the CSF IgG/albumin index (normally 10:1). In addition, 90% of MS patients have oligoclonal IgG bands in the CSF. Oligoclonal bands are also seen occasionally in some chronic CNS infections. The type of oligoclonal bands is constant for each MS patient throughout the course of the disease. Oligoclonal bands occur in the CSF only (not in the serum)."

http://www.nlm.nih.gov/medlineplus/ency ... 003631.htm
"CSF oligoclonal banding is a test to look for inflammation-related proteins in the cerebrospinal fluid (CSF)"
take control of your own health
pursue optimal self care at least as actively as a diagnosis
ask for referrals to preventive health care specialists eg dietitians
don't let suboptimal self care muddy any underlying diagnostic picture!
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