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Postby mscaregiver » Sun Jun 06, 2004 7:59 am

Hello everyone, My name is Philip and I just found this great forum while researching for info for my website..

I spend an enormous amount of time wandering the internet looking for info on any aspect of MS or its treatments and facts related..

This is a great forum and I plan on visiting often, we are in the process of trying to get LDN for my gf, she has R&R and is on low dose chemo, which I hate..

thanks for this great forums andill be back for sure..

here is my ms info website incase you would like to visit..
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Postby Debefree » Mon Jun 07, 2004 2:50 pm

Hello Phillip. I saw your website and found everything interesting.

The person you are caregiver for must be proud that you care enough to do all this research.

What lead you to do all this research and start this website?

It must have been very time consuming.

dx 04/04 RRMS
Avonex 6/04-1/06
Rebif 1/06
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Postby mscaregiver » Mon Jun 07, 2004 8:34 pm

Hi Deb, the person I care for and live with has had a tough time in life, when she was 4 years old she was holding onto a fence at preschool when a blade flew off a bushhog(mowing device) basically cut her in half on her right side, she lost her right arm from the elbow down and it is a miricle she is alive today..

She never gave up about anything, and went on threw life doing things that most would never even attempt, She went to college on an equine scholarship and was a gymnist..

Then approx 8 years ago she found out she has MS. As we have gone threw the trials and tribulations of this horrid disease , I have spent endless weeks, days and hours reading and reading and researching for info on this disease..

With something as complex as this disease and as complex as the medical aspects, I simply wanted to try and make a place where all the various info could be found and reviewed, and just hoped it would help somone find information at one area of the net..

If one person finds one thing from my website that is useful for them, then it is mission accomplished to me :-)

Take care , Philip
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Postby Shayk » Tue Jun 08, 2004 7:28 pm


Thank you so much for the link to all the research you've done over the years.

Deb should be really proud of you. :D

And, I'm just down I-64, so welcome to This is MS. I'm hoping I'll get to check out your site this week end.

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Postby Guest » Fri Jun 18, 2004 2:37 am

Hello Philip,

I am just in the process of registering as Anecdote but I registered as Sarah J L on the MSRC site. At last on this site someone seems to realise that there is some sense in what my husband and I are saying. Please get in touch with either Sriram or Stratton at Vanderbilt: I'm sure they would love to hear from you.


Postby mscaregiver » Sat Jun 19, 2004 2:47 pm

Hi Sarah..

we are in the process of looking at LDN, now with the info I have found on the aspects of Chlamydia Pneumoniae, we are also going to look into this extensively, Kathleen is ready to stop the Chemo and from what I have read, her 3 treatments are not enough to possibly have the long term negative effects I have read about..

My next project is to look into the interaction of LDN and the antibiotic treatment David has suggested. I will make that call you suggested.

Tell David a big thank you for all his work , and I am glad you are doing much better..

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