My Partner Just Dx'd with MS

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My Partner Just Dx'd with MS

Postby nickjhs » Fri Oct 12, 2012 1:16 am

Hi all, this is my first visit here, unfortunately yesterday my partner was diagnosed with relapsing MS, we were expecting the Dx but it has hit her fairly hard all the same. I have come to this forum to find help, particularly help regarding the best way I can help support her. Three years ago she was able to run 6 miles, was full of energy and drive, then she came down with what we thought was the flu, this never resolved and she was Dx'd with chronic fatique, fibromyalgia soon followed, then a stroke, then the loss of her tastebuds, constant tremor on her right arm, dragging left leg, vertigo, oh and I nearly forgot constant nausea and vomiting, she has gone from 68 Kg to just over 40Kg. So her first MRI a year or so ago showed 3 plaques which at 45 they said could be simply age related, she now has seven. She (Pauline) is still full of drive and resolve, in fact she is a marvel in how she has coped over the last three years. The Neurologist is going to start her on Avonex and has warned that the side effects could throw her into depression and has therefore prescribed an anti depressant (not sure which one). So looking for help guys, any advice, any tips, drug or treatment warnings etc. Oh and just to add spice to the mix I am a 47 year old male recently Dx' d with aspergers (see I told you Pauline is a marvel) :)

Best Regards

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Re: My Partner Just Dx'd with MS

Postby jimmylegs » Fri Oct 12, 2012 7:55 am

welcome to the forum nick, it's great that you're here right away to help your partner. there are loads of caregivers and patients here that can help advise you.

i personally focus on nutrition so if that seems like a plausible avenue to investigate, i hang out there all the time ;) and would be happy to answer any questions.

two recent posts that may be of interest:
sep 25/12 introductions-f20/topic20860.html#p198521
seps 26/12 introductions-f20/topic20865.html#p198547
odd sx? no dx? check w/ dietitian
99% don't meet these. meds/lifestyle can affect levels
status can be low in ms & other cond'ns
'but my results are normal'. typical panels don't test all
deficits occur in 'normal' range
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Re: My Partner Just Dx'd with MS

Postby want2bike » Mon Oct 15, 2012 5:18 am

Many here use nutrition to treat MS. Studies have shown people doing the drugs do worse. Your partner should get all the information and make it her choice as how she wants to treat MS. Might chech out a holistic doctor. ... _embedded#! ... html?_r=3&

http://www.overcomingmultiplesclerosis. ... gram/Diet/ ... re=related
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Re: My Partner Just Dx'd with MS

Postby caneidoit » Mon Oct 29, 2012 5:09 am

I think that by doing a little research and joining this forum says a lot! I am sure it must be very hard to be a caregiver! My husband is such a wonderful help! The more you know about the disease the more you can help each other. I am lucky to have 2 great neurologists and communication with them is huge. The more they know the more they can help. I bring a list of questions and health issues with me to my visits. Communication between you and your partner helps too. Going from being a runner and exercise outdoorsy girl that I was to a shut in who can't drive or work made me a very angry and bitter person for a while. My husband helped me through that too. I wish you both all the best!
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