*waves frantastically*

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*waves frantastically*

Postby Hibbles » Sat Jan 05, 2013 10:27 am

Hi everyone!I'm glad that I can finally interact with others of my tribe.
After 15 years, I was diagnosed with MS from a brain MRI. I'm going to go back in three months or so to see if there's any progression.
My PCP says that i'm a very aytpical case. In the two years he's seen me, there's really been no progression. I have some balance issues and a very rapid (but regular) pulse rate. I also break out in hives when I get stressed, and I think the last two symptoms are from immune system overdrive.There's more to it than this, especially my reaction to levaquin six years ago which provoked a LOT of symptoms, mainly the ones attributed to balance. What's horrid is that no doctor will implicate the levaquin in any of it. I think at the very least, it flared latent MS.
My doctors were solemn and floundering to give me the diagnosis thus far, and I was so cheery and positive that the grouchy head neuro said i was manic.On the second visit, i was pronounced delusional for making my education my top priority in life.
I am looking around for treatments, but I know i have to be especially concerned about my heart. Unfortunately, a lot of the MS drugs seem to play around with the heart rate. I feel like i'm choosing between life in a wheelchair or death from exacerbation of my cardiac problems. Does anyone have advice on how to chose a drug in this particular instance?
I'm a complicated case but an open book. My story goes far beyond what i've even typed out (which is turning into a novel),but i'm willing to talk about it more if anyone is curious.
I immediately started taking vitamin d3 after the MRI, as well as turmeric and lion's mane mushroom, cod liver oil,vitamin c and holy basil.I've often taken potassium (after a very low reading in the ER) and magnesium in the past.Thus far, I cannot tell any changes and I know I most likely need aggressive treatment.
I'm 29 now and I feel reaaaaaaaaaallly old. I miss my family at home. I decided to take a break and relax this semester as well. Definately put a bit of a damper on my momentum.
I can't read MRIs, but I can tell from the reactions that it must really be bad. They're taking it worse than I am, and I attribute that to my idea that it is simply karma from an unspecified period in the past that I am paying back.
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Re: *waves frantastically*

Postby bartman » Sat Jan 05, 2013 11:55 am

If I were you, I would investigate the antibiotic section of this site. If you believe that Levaquin was a trigger, you may very well be right. It maybe just that you didn't treat with antibiotics long enough or with the proper antibiotics. You could've had the infection for years before you realized it...like just about everyone else. Chlamydia Pn often gets into the heart also. You should be also be examined for Bartonella (which levaquin is used to treat) and babesia which can cause your symptoms also. I would definitely look into the Wheldon Protocol and also google and read Dr. Burrascano's 2008 guidelines. If you do indeed have an infection, MS meds and steroids suppress your immune system and allow the infection to disseminate making you worse and harder to treat. Also, testing for these infections are inaccurate. Hope this helps.
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Re: *waves frantastically*

Postby DougL » Mon Jan 07, 2013 11:54 am

welcome to TIMS
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Re: *waves frantastically*

Postby Rosegirl » Mon Jan 07, 2013 12:10 pm

Check out CCSVI. Your symptoms could be a lot of things other than MS including issues on blood flow and spinal fluid drainage. Start with CCSVI.org to read about the procedure and be sure to read about OND (other neurologic diseases.

The first doctor you go to will diagnose what he knows about. If you get a second opinion from another type of doctor (say a neurologist vs a chiropractor), you are quite likely to get a completely different diagnosis and set of treatment options. The bad news is that, especially with a non-standard set of symptoms (me, too), you will find so many different answers that it is frustrating and overwhelming.

There are many different and scary sounding conditions that share many of the same symptoms. You will have plenty of time to panic -- eventually. In the meantime, explore your options. There are many, but YOU have to find them. No doctor is likely to recommend you try another specialty.

It is also a source of hope, because if the first dr is wrong, the next one might be right.
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Re: *waves frantastically*

Postby want2bike » Wed Jan 09, 2013 2:09 pm

Vitamin D is believed to be very important in treating MS. You might want to get a blood test to determine your level.

http://articles.mercola.com/sites/artic ... of-ms.aspx

http://articles.mercola.com/sites/artic ... rient.aspx
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