Hi everyone!I'm glad that I can finally interact with others of my tribe.
After 15 years, I was diagnosed with MS from a brain MRI. I'm going to go back in three months or so to see if there's any progression.
My PCP says that i'm a very aytpical case. In the two years he's seen me, there's really been no progression. I have some balance issues and a very rapid (but regular) pulse rate. I also break out in hives when I get stressed, and I think the last two symptoms are from immune system overdrive.There's more to it than this, especially my reaction to levaquin six years ago which provoked a LOT of symptoms, mainly the ones attributed to balance. What's horrid is that no doctor will implicate the levaquin in any of it. I think at the very least, it flared latent MS.
My doctors were solemn and floundering to give me the diagnosis thus far, and I was so cheery and positive that the grouchy head neuro said i was manic.On the second visit, i was pronounced delusional for making my education my top priority in life.
I am looking around for treatments, but I know i have to be especially concerned about my heart. Unfortunately, a lot of the MS drugs seem to play around with the heart rate. I feel like i'm choosing between life in a wheelchair or death from exacerbation of my cardiac problems. Does anyone have advice on how to chose a drug in this particular instance?
I'm a complicated case but an open book. My story goes far beyond what i've even typed out (which is turning into a novel),but i'm willing to talk about it more if anyone is curious.
I immediately started taking vitamin d3 after the MRI, as well as turmeric and lion's mane mushroom, cod liver oil,vitamin c and holy basil.I've often taken potassium (after a very low reading in the ER) and magnesium in the past.Thus far, I cannot tell any changes and I know I most likely need aggressive treatment.
I'm 29 now and I feel reaaaaaaaaaallly old. I miss my family at home. I decided to take a break and relax this semester as well. Definately put a bit of a damper on my momentum.
I can't read MRIs, but I can tell from the reactions that it must really be bad. They're taking it worse than I am, and I attribute that to my idea that it is simply karma from an unspecified period in the past that I am paying back.