I also have facial numbness and pain. For symptoms like that there is a lot of trial and error. People are different in what works for them. They are also different in what they prefer. I only take pain meds at night. There aren't always good answers. I use neurontin for nerve pain and magnesium for muscle spasms. I also meditate, which helps me be less bothered by the pain I live with.
In your situation I would be working with either neurologist or primary doctor for pain treatment. I would read here about different things people have tried for pain. I don't know what to say about the fear. Mine has changed to be less intense with time, but I was diagnosed less than two years ago, so who knows about the future. Good luck.