hello everyone, my name is Christopher Barra. I am a 24 year old male (25 in two weeks
) I am brand new to this website and just wanted to introduce myself.
So 5 years ago (20 years old) I had a run in with optic neuritis in my left eye. They could never figure out what it was from. But all my tests for ms indicators came back normal like the spinal tap, and all the other things they checked. I also did not have multiple lesions, I only had the one on my actual optic nerve.
To honest I didn't even truly know what ms was up until this point in my life........
So on through life I went with eventually not even thinking about ms on a daily basis. I got two years of college in but always loved restaurants and that atmosphere. Long story short I have been managing a restaurant for the past two years and love it in every which way.
3 months ago I started having that similar sharp headache but in the right side of my head. After a few days I noticed my right eye vision getting blurry, dim and the whole nine yards. At first I thought this was the diagnosis of ms because it was two symptoms but double optic neuritis apparently is possible without ms. I kept it to myself until I broke down and told my mom.
We went to the hospital started a steroid treatment and after a few days it got better and eventually back to normal.
While in the hospital I was ordered for a cat scan which came back fine and also an mri. I knew the mri was going to answer the question but based on my slight claustrophobia and not being prepared mentally for the answer I jumped out of the machine and could not do it ( even with a lot of liquid valium lol)
I had never had a single other issue and was comfortable saying I was fine and didn't have any other issues.
Then crap got real, real fast. I noticed that when I sat on a certain angle the left side of my back would get a real interesting fuzzy or so feeling, the right at times did it as well. I also get the same type of feeling in either or both sides of my lower head. All these feelings seem to come about for no reason from me doing anything.
My left ear also rings very often for no reason. It is much better now but for a while at least 3 to 4 times a day my ear would do it.
Then, what seemed to be a random pain struck my left leg. It left me in pain for about week, annoying pain not too bad. But after and still to today, my leg has been only what I can describe as slightly limp and not fully responsive. It has improved 10 fold but I still can’t lift the front of my foot up high to the sky like when putting socks on.
I also have an insatiable itch through my left lower leg. This started as only what I can describe as an overly sensitive ankle but then got to extreme itchiness. I have scratched so much that I have cut and scabbed a lot of my leg. I also had an over sensitive spot through my upper shin then eventual got to a real itchy spot also.
I also have gone through slight fatigue at times but not anything enough to keep me from working 12 hours a day on my feet. Now none of these issues seemed to overlay with one another it was only one thing at a time, which looking back was a blessing. Short term memory has become a slight issue but it keeps me laughing at how stupid I can seem at times. I find when I do habitual things I tend to take a wrong step somewhere along the line but again leaves me laughing.
So I denied each issue and had an excuse for each one and said that I was fine. It wasn’t until my right eye decided to get blurry and bad for another time that made me take the first step I needed to take for the rest of my life. I went through a severe depression for about two months trying to get to the point that I would at least be willing to accept the outcome of all this. I finally made it through it and was willing to accept my fate and I cannot lie, I have never been happier in my life. I absolutely appreciate life and happiness more so than I ever have.
I got the mri over the weekend, saw my doctor today and I do have multiple lesions on my brain. Apparently they are still active also but I feel great. I am seeing an ms specialist next week and will figure out where to go from here. I am not afraid of this disease and I am never going to let it take me out. I don’t care what my limitations are I am pushing myself past them no matter what the limits are. Now, I have none so I am going to stay on my feet 12 hours a day, eat healthy, take medication, exercise, and go to the gym habitually like I have been doing for the last 5 years.
The most important thing I have against this disease is a positive attitude, which is something I have never had in my life until I accepted this fate. This has already changed me for the good, and I don’t care what it does to me I will make it all turn into a good outcome.
I was afraid this disease was going to leave me not knowing why I was put on this earth, but now I know the reason I am here is to not let this disease beat me. My attitude, diet, exercising/lifting, and whatever medication we decide will be my cure. As far as I am concerned not letting this disease affects you negatively and slow you down in life is as good as a cure for it.
I don’t really know how this turned into a two page paper but yeah hellllloo everyone lol.