MSdaughter1 wrote:This is my first MS forum I've ever been on, so I don't really know what to expect. My mother, a nurse, was diagnosed with MS-relapsing/remitting in December of 2009. I was 18 years old and a freshman in college so I didn't really care/understand what this diagnosis was going to mean for my family. I'm now 22 years old and a month away from graduating from nursing school. I'm now MUCH more aware of MS and feeling the impact on my family heavily. So I guess what led me here is the hope of finding answers on how to speak to my mother about the impact her emotional lability and her lack of recognizing it is having on my family...
As you are discovering, MS is a disease that slices the patient and family members one piece at a time and over a long period, it can be devastating to everyone around it.
My wife had MS for over 35 years. (she passed away in 2007) I know what it is like to watch someone both physically and emotionally go downhill with this disease. Trying to stay ahead of the problems can prove very difficult and requires not only the use of medications that work for the patient but also an all encompassing regiment of proper exercise, diet and support from family and friends. The big problem is that what works for one patient may be totally useless for the next. One only need to look at the results of those patients who choose to try some of the powerful immune system altering drugs.
I think it is important to come under the care of a good MS clinic that provides all around kind of care for your mother's physical and emotional needs. She needs outside counseling for her depression. You may think you can help in this area but your mother isn't likely to listen too much to someone who is so close to her.
And like Kronk said...be careful of advice from those who suggest the medical establishment is bad and non listening to your needs. While everyone is entitled to his/her opinion, some people can be very narrow minded when it comes to what's good and not good for MS.
I wish your mother the best luck in dealing with this disease. You've come to the right forum to obtain as much info as you can from those who are very involved with MS. And please remember, MS patients react extremely differently to the treatments that are out there. Finding the right one for your mother is the challenge.