Welcome to ThisIsMS, linda75. (You have a good name there!)
I hope you have a PCP or pediatrician who has a good rapport with your son. In the first appointment discuss a written list
of all your son's symptoms. Ask for the initial testing to rule out a vitamin B12 deficiency: #1 serum B12 test, #2 serum folic acid test, #3 serum homocysteine test, and #4 a urinary
methylmalonic acid test (uMMA) – do not
begin taking any vitamin B supplements before the testing, as doing so will skew the test results.
"Everything You Want Your Doctor to Know about Vitamin B12"http://www.youtube.com/watch?v=BvEizypoyO0
I highly recommend this 50-minute documentary from the filmmaker Elissa Leonard, featuring Sally Pacholok, RN, BSN & her husband Jeffrey Stuart, D.O. (authors of the book, Could It Be B12? An Epidemic of Misdiagnoses
); Lawrence Solomon, M.D., hematologist with Yale Medical School; Ralph Green, M.D., hematologist at UC Davis; and Donald Jacobsen, PhD, at the Cleveland Clinic (Homocysteine Research Lab).
@1:23 "The neurological manifestations well precede the hematological manifestations."
Part one tells the story of a boy about your son's age, I believe. Please watch this documentary, and get the book if possible – maybe from your library.
We wish you all the best and are here for you if you have further questions.