Hi my name is Kelly and newly diagnosed

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Hi my name is Kelly and newly diagnosed

Postby KellyKat » Fri Jun 02, 2006 11:34 am

Hello everyone -

I was just diagnosed in January 2006 and already experienced my first relapse. I do have lots of questions and hope that someone can help clarify a few for me. The put me on avonex immediately, which i stayed on until the last month. I went through my first relapse - went through the five days of solumedrol and WOW - wasn't expecting the withdrawals that I had. They must have forgotten about that. I finished up with the round of that around the 8th of May, but NOW i feel like i have gained 20 lbs. Anyone know anything about that??? Will I get back to normal?? So because i was feeling so bad with the solumedrol, i didn't take my avonex that week. Then after not being on the avonex for over a week, realized how bad i was feeling on it. I feel great now, but i do realize that i need to be on something. So my neuro offered copaxone, which i am not on yet, but seriously considering. Can anyone offer anything positive? Or tell me what to really expect???? Please. Thanks for listening and hope soemone can help!!! :D
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Postby Arron » Fri Jun 02, 2006 1:57 pm

Hi KellyKat, welcome to the site. You will find a very intelligent and helpful group of people here willing to help you through your questions. I suggest you repost your questions in the appropriate forums if you don't received responses here.

welcome again!
Disclaimer: Any information you find on this site should not be considered medical advice. All decisions should be made with the consent of your doctor, otherwise you are at your own risk.
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welcome kel

Postby jimmylegs » Fri Jun 02, 2006 2:38 pm

hi kelly welcome! i was dxd in jan also but am still recovering from my first attack and haven't taken any drugs, so you are way more experienced than i already! i imagine you will have been reading in the copaxone forum, and will find all kinds of helpful info from the folks there :D

when you say you feel like you gained weight, do you mean you're bloated, or you're kind of dragging yourself around a bit? i definitely had lead-legs (or 'jimmylegs' if you will) for a while at the beginning and i'm SO much better now so i hope that is encouraging. there really is no more jimmy about my legs at all :D
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