During the diagnosis (which all started with Lhermitte's Sign that I mentioned to my doctor in May), I had several "aha" moments: numbness, forgetfulness, muscle spasms, fatigue, moments when my arms were so weak I thought they would fall off. I had a C-spine MRI and a brain MRI--nothing shows on the brain one...but the C-spine has lesions all over the place. I had a lumbar puncture and ruled out things like Lymes. The lumbar puncture sucked. I had the headache for 4 days, then finally a blood patch.
I will start Solumednol IV treatments on Tuesday next week for 5 days, then prednisone for the next 9 (tapering off of the steriods). After that, I need to decide what long term treatment I want to go with of the ABCR. My doc gave me an excuse to take the week off while on the Solumednol. Said it would be best if I don't work and get stressed.
So...any advice out there? Anyone do the Solumednol IV treatments? Which of the ABCR's is the best?
Thanks!
Twinsmom
