Hi. newly diagnosed today. Not sure how to feel. Part of me just wants to get on with treatment and get rid of the tiredness and pain. Another part is afraid of the future. I have twin 8 year old daughters, a wonderful husband with a brand new business and a demanding career at one of Fortune's top companies.
During the diagnosis (which all started with Lhermitte's Sign that I mentioned to my doctor in May), I had several "aha" moments: numbness, forgetfulness, muscle spasms, fatigue, moments when my arms were so weak I thought they would fall off. I had a C-spine MRI and a brain MRI--nothing shows on the brain one...but the C-spine has lesions all over the place. I had a lumbar puncture and ruled out things like Lymes. The lumbar puncture sucked. I had the headache for 4 days, then finally a blood patch.
I will start Solumednol IV treatments on Tuesday next week for 5 days, then prednisone for the next 9 (tapering off of the steriods). After that, I need to decide what long term treatment I want to go with of the ABCR. My doc gave me an excuse to take the week off while on the Solumednol. Said it would be best if I don't work and get stressed.
So...any advice out there? Anyone do the Solumednol IV treatments? Which of the ABCR's is the best?