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Re: Hello

Postby Zyklon » Sat Dec 02, 2017 11:16 am

For the horde :p

If this is lyme, I will be mad...
Pain! You made me a, you made me a believer, believer
Pain! You break me down, you build me up, believer, believer
Pain! Oh let the bullets fly, oh let them rain
My life, my love, my drive, it came from... Pain!
Zyklon
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Re: Hello

Postby jimmylegs » Sat Dec 02, 2017 11:42 am

interesting reading (you've probably already seen)

Laboratory Diagnosis of Lyme Disease - Advances and Challenges
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4441761/
take control of your own health
pursue optimal self care at least as actively as a diagnosis
ask for referrals to preventive health care specialists eg dietitians
don't let suboptimal self care muddy any underlying diagnostic picture!
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Re: Hello

Postby Zyklon » Mon Dec 18, 2017 4:12 pm

Short Update:

Still infection, still resisting to take antibiotics (ex abx lover here), no fever and absolutely zero symptoms.

This is the longest period that I have experience an infection. Everyday I feel better and no worsening. Still taking Rebif and 300 mcg selenium daily. Plenty antioxidants to fight infection. I think it heals slowly but perfectly comfortable.

I miss GYM so bad. Once infection is over, I will have new tests.

Winter is here, take care ;)
Pain! You made me a, you made me a believer, believer
Pain! You break me down, you build me up, believer, believer
Pain! Oh let the bullets fly, oh let them rain
My life, my love, my drive, it came from... Pain!
Zyklon
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Posts: 272
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Location: Turkey

Re: Hello

Postby jimmylegs » Mon Dec 18, 2017 5:25 pm

grr stubborn. what's the full day's supplemental regimen, incl combinations and timing, at this point?
take control of your own health
pursue optimal self care at least as actively as a diagnosis
ask for referrals to preventive health care specialists eg dietitians
don't let suboptimal self care muddy any underlying diagnostic picture!
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Re: Hello

Postby Zyklon » Tue Dec 19, 2017 8:31 am

Daily:

5000 IU D3 + 200 mg magnesium citrate + 100 mcg selenium after breakfast
22 mg zinc picolinate + 100 mcg selenium + 20 mg Citalopram after lunch
200 mg magnesium citrate daily after lunch or right after gym
5000 mcg biotin + 100 mg milk thistle between lunch and dinner
200 mg magnesium citrate + 100 mcg selenium after dinner

250 ml filtered or Turkish coffee
75 grams of mixed nuts with 15g protein
Low fat, low gluten diet

Not daily:

25 mg iron biglycinate on monday/wednesday/friday/sunday before breakfast, right after wake up
Solgar VM 75 on tuesday/thursday/saturday after lunch
1000 mcg B12 on tuesday/thursday/saturday/sunday after lunch (the days that I don't take rebif)
Solgar Advanced Antioxidant on monday/wednesday/friday/sunday between lunch and dinner
Pain! You made me a, you made me a believer, believer
Pain! You break me down, you build me up, believer, believer
Pain! Oh let the bullets fly, oh let them rain
My life, my love, my drive, it came from... Pain!
Zyklon
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Posts: 272
Joined: Sun Apr 16, 2017 1:45 pm
Location: Turkey

Re: Hello

Postby jimmylegs » Tue Dec 19, 2017 8:42 am

ok consider doubling up on the 22 mg zinc picolinate for a week. as you have been, keep it away from the iron. 44mg should also be fine all at once, if not taken on an empty stomach. if not, can separate 22mg doses. but short term, do consider getting daily zinc input up closer to ~50 mg. long term, it's no good to take more than 40mg of supplemental zinc per day.

for the time being, your zinc intake will still be competing with iron.

pls consider also:

http://www.clevelandclinicmeded.com/med ... on-3-2011/

the whole page ^ provides balanced and worthwhile reading; a couple cherry-picked and one-sided items include:

"Oxidative stress. Iron-derived free radicals can cause a rise in inflammatory cytokine levels, especially if the ferritin level is elevated (> 500 μg/L). This cytokine rise is worrisome,as it may have acute detrimental effects on cellular homeostasis, leading to tissue injury,15 while chronically it might be related to enhanced atherosclerosis and cardiac disease.16"

"Bacterial growth. Many bacteria depend on iron for their growth; examples are Escherichia coli; Klebsiella, Pseudomonas, Salmonella, Yersinia, Listeria, and Staphylococcus species; and Haemophilus influenzae. In vitro studies have linked increased bacterial growth with increased transferrin saturation in plasma.15,19"

maybe could be an interesting experiment to give the iron a break for a week, let zinc have the field, see how you go??
take control of your own health
pursue optimal self care at least as actively as a diagnosis
ask for referrals to preventive health care specialists eg dietitians
don't let suboptimal self care muddy any underlying diagnostic picture!
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jimmylegs
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Re: Hello

Postby Zyklon » Tue Jan 09, 2018 4:08 am

Yeeeey another achievement. For the first time I did not use antibiotics for infection. It took almost 45 days. Lungs, throat, ears. I was symptom-free all the time.

Now regular regimen and gym. Tests next week. Neuro appointment on 20th. Take care ;)
Pain! You made me a, you made me a believer, believer
Pain! You break me down, you build me up, believer, believer
Pain! Oh let the bullets fly, oh let them rain
My life, my love, my drive, it came from... Pain!
Zyklon
Family Elder
 
Posts: 272
Joined: Sun Apr 16, 2017 1:45 pm
Location: Turkey

Re: Hello

Postby jimmylegs » Tue Jan 09, 2018 6:22 am

congrats on toughing it out without abx! i am hoping for some clarification though.
1. what kind of infection was it? if you are in the habit of using abx to combat infection, can we assume bacterial?
2. how did you know you had an infection for 45 days (whew!) if you were asymptomatic? or do you mean you had no neuro symptoms throughout.
3. what was your final strategy/regimen to fight this latest incursion?
4. any updates on the lyme situation?
take control of your own health
pursue optimal self care at least as actively as a diagnosis
ask for referrals to preventive health care specialists eg dietitians
don't let suboptimal self care muddy any underlying diagnostic picture!
User avatar
jimmylegs
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Posts: 11696
Joined: Sat Mar 11, 2006 4:00 pm

Re: Hello

Postby Zyklon » Tue Jan 09, 2018 8:00 am

1) Yea bacterial
2) Lots of coughing, sneezy nose. No neuro symptoms
3) Boosted zinc, selenium and anti-oxidants
4) No updates, tests this week
Pain! You made me a, you made me a believer, believer
Pain! You break me down, you build me up, believer, believer
Pain! Oh let the bullets fly, oh let them rain
My life, my love, my drive, it came from... Pain!
Zyklon
Family Elder
 
Posts: 272
Joined: Sun Apr 16, 2017 1:45 pm
Location: Turkey

Re: Hello

Postby jimmylegs » Tue Jan 09, 2018 9:13 am

interesting. i hadn't really registered before that cough/cold symptoms can originate from both viruses and bacteria
https://www.summitmedicalgroup.com/news ... ifference/

again, glad you managed to avoid abx. sucks that it took 6 weeks though!!! did you ever end up taking a short break from iron supplements?
take control of your own health
pursue optimal self care at least as actively as a diagnosis
ask for referrals to preventive health care specialists eg dietitians
don't let suboptimal self care muddy any underlying diagnostic picture!
User avatar
jimmylegs
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Posts: 11696
Joined: Sat Mar 11, 2006 4:00 pm

Re: Hello

Postby Zyklon » Tue Jan 09, 2018 9:21 am

After you wrote about iron, I stopped. I will resume in a few days.
Pain! You made me a, you made me a believer, believer
Pain! You break me down, you build me up, believer, believer
Pain! Oh let the bullets fly, oh let them rain
My life, my love, my drive, it came from... Pain!
Zyklon
Family Elder
 
Posts: 272
Joined: Sun Apr 16, 2017 1:45 pm
Location: Turkey

Re: Hello

Postby jimmylegs » Tue Jan 09, 2018 3:48 pm

so still took a while though, huh. going on three weeks or so yes? at least it's over now, finally!
take control of your own health
pursue optimal self care at least as actively as a diagnosis
ask for referrals to preventive health care specialists eg dietitians
don't let suboptimal self care muddy any underlying diagnostic picture!
User avatar
jimmylegs
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Posts: 11696
Joined: Sat Mar 11, 2006 4:00 pm

Re: Hello

Postby Zyklon » Fri Jan 19, 2018 5:23 am

First of all, thank you very much everyone for your support.

My first annual MRI and it is NEDA (No evidence of disease activity). Normal atrophy, no new lesions and old lesions are smaller now. So what I do works for me ;)

Mild sinusitis and still no abx. Perfectly manageable.

Cheers, take care ;)
Pain! You made me a, you made me a believer, believer
Pain! You break me down, you build me up, believer, believer
Pain! Oh let the bullets fly, oh let them rain
My life, my love, my drive, it came from... Pain!
Zyklon
Family Elder
 
Posts: 272
Joined: Sun Apr 16, 2017 1:45 pm
Location: Turkey

Re: Hello

Postby jimmylegs » Fri Jan 19, 2018 5:49 am

hahaha i need a giant thumbie icon. well done :D
take control of your own health
pursue optimal self care at least as actively as a diagnosis
ask for referrals to preventive health care specialists eg dietitians
don't let suboptimal self care muddy any underlying diagnostic picture!
User avatar
jimmylegs
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Posts: 11696
Joined: Sat Mar 11, 2006 4:00 pm

Re: Hello

Postby Zyklon » Fri Jan 19, 2018 5:53 am

Image

This is me and your thumbs up :D
Pain! You made me a, you made me a believer, believer
Pain! You break me down, you build me up, believer, believer
Pain! Oh let the bullets fly, oh let them rain
My life, my love, my drive, it came from... Pain!
Zyklon
Family Elder
 
Posts: 272
Joined: Sun Apr 16, 2017 1:45 pm
Location: Turkey

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