New from Dayton, Ohio

New members should feel free to introduce themselves here

New from Dayton, Ohio

Postby Loobie » Tue Sep 12, 2006 8:56 am

Hello All,

I'm Lew Chapman from Dayton, Ohio. I am a 40 year old, white male that has had MS for 5 years now. I'm very high functioning in that none of my symptoms affect my motor ability now. I have horrible Optic Neuritis, bladder and bowel issues and lots of tingling and numbness. The only thing that approaches debilitating is when my bladder makes me pee every ten minutes. And truthfully I would call that more of a nuisance since I still can do it on my own. The bad part is that it keeps me up all night and I suffer from sleep deprivation.

I am entering the Phase IIb of a trial on a drug called Tovaxin. This is the MS vaccine from PharmaFrontiers. I am very excited about being in this trial as even if you get placebo, you still get the real thing when it is over since it is only good for you (it is made from you own stem cells and does no one else any good). Very promising outlook for this drug and I plan to update on here as it goes by.

I just wanted to introduce myself!
User avatar
Family Elder
Posts: 2197
Joined: Mon Sep 11, 2006 3:00 pm
Location: Dayton, Ohio USA


Postby bromley » Tue Sep 12, 2006 10:24 am

Hi Lew.

I'm a 41 year old white male - dx 2.5 years ago. Thankfully, do not have and bladder / bowel problems - mainly stiffness in knees and ankles. Good luck on the Tovaxin trial and please keep us posted.

User avatar
Family Elder
Posts: 1888
Joined: Fri Sep 10, 2004 3:00 pm

Postby Arron » Tue Sep 12, 2006 1:26 pm

Hi Loobie, welcome to the site... your participation in a clinical trial is commendable and I do encourage you to share your experiences with the community. Hope comes through knowledge of what's around the corner.

Welcome again.
Disclaimer: Any information you find on this site should not be considered medical advice. All decisions should be made with the consent of your doctor, otherwise you are at your own risk.
User avatar
Volunteer Moderator
Posts: 893
Joined: Sun Feb 01, 2004 4:00 pm
Location: California, USA

Postby Grumpster » Wed Sep 13, 2006 5:34 pm

Hi Lew,

I am 36 year old white male. I also have O.N. pretty bad in both eyes, but for now I am still able to work. In addition, many other bizarre symptoms grace me daily. Good luck in the trial. We all could use some real breakthrough.

Best Regards

User avatar
Family Elder
Posts: 188
Joined: Tue Aug 01, 2006 3:00 pm
Location: S. California

Postby JFH » Fri Sep 15, 2006 6:59 am

Hi Lew

I cant remember where I got this link - might even been on TiMS ! But a very good presentation from MS Soc CA on bladder and bowel problems with MS and their management. Hasnt stopped me "going" every 60 mins but I feel I know more about why that's happening 8)

Welcome aboard and hope you find the community here a real support - I have.
I am what I am
User avatar
Family Elder
Posts: 288
Joined: Sun Jul 11, 2004 3:00 pm
Location: England

Postby Loobie » Mon Sep 18, 2006 6:10 am

Thanks for the link John. I appreciate it!
User avatar
Family Elder
Posts: 2197
Joined: Mon Sep 11, 2006 3:00 pm
Location: Dayton, Ohio USA

Return to Introductions


  • Related topics
    Last post

Who is online

Users browsing this forum: No registered users

Contact us | Terms of Service