And here's my story

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And here's my story

Postby naturalredhead » Sat Oct 28, 2006 9:11 pm

I've read EVERY introduction post. In fact, there's a chance I've read every post in every forum at this wonderful site. Not sure what that sez about me and don't really want to analyze it much. Yikes! I'm 47, female, married with 2 kids and was diagnosed with MS two months ago. I was offered the CRABS only and recently underwent Steriod IV treatment. I'm titrating betaseron and am taking herbal and vitamin supplements. Like a few dx'd w/ MS, I now realize I've had it for decades--never suspected a thing until 3 years ago. Symptoms? Got em all. Questions? Yep, those too. Oddly enough, one thing that troubles me is reading about the many different treatments/drugs/vitamins/herbs/diets-- that I have no idea which path to take. Am I doing the right meds, etc? Yes, I'm supposed to trust my neuro, but this is not his fight. I started yelling "I'm so confused" at the computer one nite recently and my husband threatened to disable our internet. Nowadays, I just mutter the phrase under my breath. Only, lately I've added..."and scared."
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Postby jimmylegs » Sun Oct 29, 2006 12:36 am

hey there, sounds like you're a nethead like the rest of us here so at least you're in like company! there is a lot to consider isn't there. at 2 months in it's still very overwhelming. at least you are already taking some action. you have time to wrap your head around it more and figure out if you need to make any changes to personalize your treatment. i can't believe you've read every post! anyway welcome to the fold ;D
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Welcome, naturalredhead

Postby lyndacarol » Sun Oct 29, 2006 7:22 am

Jimmylegs has spoken well for me. My! You have been busy reading! But, as you already realize, this is your fight; you have taken responsibility and you are educating yourself as best you can. So are we all here at this site!

Until the definitive answer comes, we are all looking and sharing. Sometimes we vent (yell at computers?), but we are human and that is normal.

If you can accept us as we are, we are glad to have you join us (though we are sad that MS brought you here).
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Postby Melody » Sun Oct 29, 2006 11:14 am

I'm scared toooo but I rarely admit that even to myself as John needs to count on me to keep his fear at bay. I feel as long as I'm calm it calms him. The chances are he tries to appear calm for me and he's scared toooo. Welcome aboard but that's nothing I want to type in. I'd rather we never had to meet like this. Great site. I'd start with allergy test and work from diet stat as it's a least a step onto the path that you can control. Remember to tap on wood and cross your fingers and toes.
John was diagnosed Jan 2005. On lipitor 20mg .On Copaxone since July 4,2005. Vitamin D3 2000iu-4000iu (depending on sunshine months)June 10 2005(RX::Dr. O'Connor) Omega 3 as well Turmeric since April 2005. Q10 60mg. 1500mg liquid Glucosamine Nov 2005.
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Postby amelia » Sun Oct 29, 2006 2:07 pm

Welcome to a site of many directions. There are those of us who have used the CRABs and have stopped. Those still on them and those who never took them. If your body isn't doing too much weird stuff right now, slow down and take all of this in. Then you can come up with your own decisions of medicines, to take them or not. This is THE site to be at, in my opinion. Best of luck. :wink:
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Postby Muu » Sun Oct 29, 2006 2:51 pm

Hello and welcome. I didn't join the site that long ago (August) and also found the amount of information head spinning to begin with. There is a wealth of information and experience to be found here whatever course of action you choose to take. All the best.
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nice one mel

Postby jimmylegs » Sun Oct 29, 2006 3:46 pm

mel i really like your suggestion with respect to control. for me at the beginning i had to read like a maniac to keep the fear at bay, but more in the journals than the posts. but definitely part of the confidence level i'm at now is to do with yes the reading but also very much from doing my tests and monitoring things and knowing that i'm making progress. good call.
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Postby REDHAIRANDTEMPER » Mon Oct 30, 2006 10:12 am

welcome the group...i still have moments of terror as i call it..i wake up and it hits me all of a sudden when i cant get out of bed real fast...then i get a small panic takes me a few mintues and then i hear my kids and i calm down...but i have read just about everything on here also...of course i am still having to wait for them to tell me for sure i have this.....they have done all sorts of test but of course havent told me yes for sure....very frustrating its like hitting a wall all the time.....but this site has helped me alot...hope it helps you to

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your in good company

Postby mick_b » Tue Oct 31, 2006 6:13 pm

Hi Naturalredhead

I think your post touched a nerve with a bunch of us. I’ve been at this since 2000. I went through all the stages (denial was a big one). I may have even bumped into acceptance one or twice. I think the important thing to remember is to do the best you can to take care of yourself and accommodate the changes. I am finally starting to accept that something’s are out of my control. The fear goes away when I go there.

There are a lot of good people here, now your one of them. Welcome

Hope this helps (if only a little),

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Postby Arron » Wed Nov 01, 2006 11:17 am

thank you for saying hello, naturalredhead... you're among friends now.
Disclaimer: Any information you find on this site should not be considered medical advice. All decisions should be made with the consent of your doctor, otherwise you are at your own risk.
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