Hello everyone, my name is Sharon I am 52 years old. In the spring of 2005 I went to my Dr. complaining of tingling in my left foot and leg up to the knee. After going through an EEG and finding nothing wrong, he decided it was just an isolated nerve condition and that it would probley just go away on its own. Then he said “I might think MS but you’re too OLD!” Well I left the office and pretty much forgot about it. The Dr. was right it did go away, but it came back, and went away, and came back. I accepted the Dr.’s explanation and went on with my life.
Then in late November I all of the sudden got double vision, to make a long story short, it took over 4 months, and mega doses of prednisone to
get rid of the double vision but I still can not see out of both eyes at the same time, my eyes do not track together. During the search to find out what was wrong my optometrist did a brain MRI and discovered that I had about 30 spots on my brain and he suggested MS. An optometric neurologist read my scans and said she didn’t think so, first I was too OLD! But also the spots were not in the right place.
I went back to my family Dr. reminded him of what he said earlier that year. We started going over symptoms I was having, Heat sensitivity, trouble sleeping, tingling in both hands twitches in ankles, hands fingers and arms, pain in my back, unable to stand for more than five minutes due to pain in my lower back legs and my legs start to shake real bad, excessive cramping in my toes feet caves and thighs, trouble going up and down stairs my legs shake so bad, and then those pesky mussel spasms, in my toung my ears my feet, my legs my arms, just all over. Sharp stabbing pains that last only a few minutes in different parts of my body, and the worst of all mind fog, every one at one time or another has done something like put the keys in the fridg, but I am doing stuff like all the time, and communicating when you can’t find the words is tough. I even forgot my granddaughter’s name! I knew her middle name but could not for the life of me remember her first.
On to another Dr. this times a brain neurologist, Dr. Carlson. Now for all of the tests, I won’t go through them all, but I do know I don’t have Lime, Lupus, and a lot of other scary diseases. I had a Ct, MRI of brain, neck and spine, also a lumbar puncture. The only thing to show up on these is those pesky spots and arthritis in my spine. I’ve been to cardiology, urology, and many other specialists. Nothing wrong! At this point my neurologist isn’t ruling out MS.
I’ve been reading posts on this site for about a month, and I see how frustrating MS is but at least when you get dx’ed you can get on some kind of a treatment plan, I am just sitting in limbo waiting.
My prayers go out to all of you.