Hi from Sanjay in Toronto

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Hi from Sanjay in Toronto

Postby Sanjay » Mon Apr 23, 2007 6:41 pm

Hi,

I've just been diagnosed with MS after one episde. MRI shows many lesions and enhancements. physically I feel ok.

wondering about what to do...

can anyone tell me if they have had any improvement with oral supplements such as calcium amelethylphosphate or any others?

Also has anyone benefitted from the best bet diet?

thank you and take care
Sanjay
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Welcome, Sanjay

Postby lyndacarol » Mon Apr 23, 2007 7:39 pm

I know nothing about the supplement you mention. I do not know firsthand of anyone's experience with the Best Bet Diet.

I assume the Best Bet Diet is similar to the one outlined in the book, The Gold Coast Cure by Andrew Larson, M.D. and his wife Ivy Ingram Larson. She attributes her cure from MS to the diet (modified Swank diet) and exercise. I think there is much validity to it because it limits foods that stimulate the pancreas to secrete insulin; exercise also reduces insulin.


I have reread the book and am trying to follow its recommendations more strictly since I have elevated insulin levels that I just can't seem to get back to normal.
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thank you

Postby Sanjay » Tue Apr 24, 2007 4:02 pm

thanks for your response, i read on the web that calcium EAP can help multiple sclerosis (google it)

I've also read that not enough gold absorbed from good causes it, gluten causes it, mercury causes it.... etc.

there's just too much. I just want to be better.

it's frustrating. i'm not a scientist, i'm just a guy who just got told he has MS and doesn't know what to do!

hugs,
Sanjay
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Postby Loobie » Tue Apr 24, 2007 4:24 pm

Sanjay,

First of all, welcome! Second, spend some time here reading posts that interest you. You will find just about all of it here. This page is the AA for MS. It's people who have it helping people who have it like no one else can. You can get positive reinforcement here, education and enlightenment, and you can even get into a good argument!

I truly hope you continue to feel OK. This disease is really funny. My first 3 or 4 years I didn't feel much worse than normal most of the time. The last couple of years have been a different story, but I am still doing good at a newly turned 41 years. Eat right, don't smoke and exercise to the best of your ability. That's my $0.02 for how to begin to handle this. Some people like to stay really informed, if that's you, you are in the right place. Once again, welcome.

Lew
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Postby oreo » Tue Apr 24, 2007 6:51 pm

Sanjay,

Welcome to our little club - wish you didn't qualify for membership, but ...

If you have been diagnosed after only 1 episode, then my first piece of advice would be to relax a little.

I hade my first episode when I was 20 BUT I wasn't diagnosed until I was almost 50. (MRI didn't exist when I was 20.) For the 30 or so years in between, the disease reamined fairly quiet.

As for your question about drugs & insurance - I am on Rebif which is one of the 4 basis drugs used to treat RR MS. It is covered by my wife's medical plan. Tysabri, being fairly new may not yet be on the covered drugs list of many plans, so if you have plan coverage - give them a call.
Carpe Diem
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Postby Muu » Wed Apr 25, 2007 2:24 pm

Hello Sanjay. My ms is very much like the previous poster- first symptom at 20 but not dx until aged 40 due to the mildness of what must have been exacerbations. There's a wealth of info to be found here on almost everything ms related including supplementation and diet as well as the standard drugs. I follow the Best bet diet ie no gluten, grains, dairy or legumes as best I can. Take a look at the treatments section for more info. All the best.
Muu
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Postby REDHAIRANDTEMPER » Thu Apr 26, 2007 12:46 pm

HEY SANJAY,
welcome to the group here..for me they are still doing tests on me and stuff like that they keep telling me that they are pretty sure i have ms but they dont want to give a defently answer until something shows up for me....so i sit and wait for them to find something....its the famous waiting game here for me....it would have been nice to be diagnosticed fast......hard to believe that ya would be sitting there typing in the computer i wish they would have figureed this disease out for me earlier...but welcome to the group

chris
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Postby daverestonvirginia » Mon Apr 30, 2007 11:11 am

SANJAY, Welcome, I was diagnosed just about a year ago. Thinking back it seems so long ago, but I do remember how the whole thing scared the " " out of me. The good news is it has been a year and I feel great. I agree with the other posts, take your time do some research, figure out what if anything you want to do. As for myself, I am on Copaxone, the Best Bet Diet including all the supplements. I do not know which is helping me, but I know the diet in general has been great for me. I lost over 20 pounds, cut my total cholesterol in half and my high blood pressure is a thing of the past. The best part about it I do not miss the junk food I use to eat at all. So hang in there things can go many ways, but they can go pretty well for you. Dave
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thank you for your replies

Postby Sanjay » Tue May 01, 2007 2:10 pm

i have been taking basic supplements, i cannot afford all the recommended ones. have seen a homeopath 3 times and am avoiding gluten and dairy, although it's very difficult to avoid gluten.

mainly i'm scared and stressed all the time. i'm not sure how to handle the diagnosis.

i'm looking for work with benefits and also worried about being denied any.

i live in ontario, canada.
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Postby agate » Tue May 01, 2007 6:26 pm

Welcome, Sanjay!

I'm sorry I can't answer your questions, but I've had MS for over 27 years and have generally found that eating sensibly helps me. I also have Type 2 diabetes and eat a vegetarian (lacto-ovo-vegetarian, actually) diet. I've done this since 1984 and don't miss meat at all.

It's cheaper and cleaner to avoid meat, I've found. But this is just my opinion.
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Calcium AEP

Postby havingms » Tue May 01, 2007 6:27 pm

based on the Hans Niepert protocols:

http://www.wellnessresources.com/produc ... um_aep.php

Hang in ther man and know that you are not alone. Good things happen.
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Postby namedbos » Mon May 07, 2007 2:41 pm

Hi Sanjay:
Welcome to this site you will find good information here. I can see you seem to also be from India like me. I was diagnosed a few years back and am now thinking of going on medication. When you mention your first episode what excatly was it.

I had muscle weakness in my thigh three years back and MRI showed lescions , thats it. My condition has not improved but has not gotten much worse either without meds but I now want to take them to see if they help at all. In my case I feel worse in winters and better in summers which seems contrary to most MS sufferers , its not common in Asian Indian males so I am curious what your case is like..
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