Welcome to the site. You wrote:
Most of this began AFTER the rebif. Did that make it worse? If anyone can tell me what, if any of it, is typical, I'd be forever grateful!!
I sort of doubt if there's an easy way to determine if the Rebif made your situation worse.
In my case I initially chose Avonex (another interferon) and consistently found that it made my symptoms worse, although not nearly to the extent that you are describing. In my case I generally felt "worse" about 5 days out of seven and attributed it to "side effects" that in my case never stopped. I stuck with it for 3 years and switched to Copaxone several months ago.
In retrospect I wish I would've made the switch much sooner. Being off the Avonex has made an incredible difference. Once I stopped I started feeling better very quickly, so I personally think it's at least a possibility that Rebif might not be the right CRAB for you.
When I initially reported to my neuro that I thought the Avonex made my symptoms worse he didn't hesitate to note that in his experience that definitely happens with some people. I'll be curious to learn what "light" your new neuro and the Hopkins visit shed on your circumstances so I hope you'll let us know their take on it.