This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
It is currently Wed Jun 19, 2013 7:59 pm


All times are UTC - 8 hours [ DST ]




Post new topic Reply to topic  [ 2 posts ] 
Author Message
PostPosted: Tue Aug 05, 2008 4:50 pm 
Offline
Newbie
User avatar

Joined: Wed Jul 30, 2008 3:00 pm
Posts: 1
I have visited other sites over the past years on and off, usually when I have an exacerbation, but to be honest with you, I really was not looking for people to bless me or pray for me. Though I know their hearts were in the right place. I just want to be able to feel connected, to talk to others who know what it feels like to have these wierd sx, that only someone else with MS would understand.

I am on Rebif, and found that a lower dose three times a week, rather than the full dose is most tolerable. I am a relativly small person, so one size does not fit all. I have an excellent neuro, but I had to suggest the smaller dose, after doing my own research. I am also blessed with a very smart psychiatrist who understands that it takes work and patients to get the right combination of meds.

I just finished a course of Solumedrol, for a flair up of pain. My old friend Neurontin stopped working well- so I am going to try Cymbalta- anyone else out there tried Cymbalta for burning pain?

Any, happy to share whatever I can.

:)

_________________
Penny


Top
 Profile  
 
 Post subject:
PostPosted: Tue Aug 05, 2008 4:55 pm 
Offline
Family Elder
User avatar

Joined: Sun Jun 01, 2008 3:00 pm
Posts: 791
Location: Mississippi
Welcome Penny,

I too am on Rebif, I take the full dose.

I think you are right, only another person with MS understands exactly how you feel. This is such a strange disease.

CF

_________________
Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.


Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  [ 2 posts ] 

All times are UTC - 8 hours [ DST ]


Related topics
 Topics   Author   Replies   Views   Last post 
There are no new unread posts for this topic. glad to find this site!

amelia

1

1431

Thu Feb 10, 2005 9:11 pm

Arron View the latest post

There are no new unread posts for this topic. Glad I found this site!!!

Carriegirrl

4

939

Tue Dec 08, 2009 10:11 am

Bubba View the latest post

There are no new unread posts for this topic. Glad to have encountered this site

WillowUK

1

236

Wed Oct 17, 2012 5:45 pm

lyndacarol View the latest post

There are no new unread posts for this topic. Glad to be here

HamptonEdwards

0

785

Sat Feb 06, 2010 2:04 am

HamptonEdwards View the latest post

There are no new unread posts for this topic. Glad to be here!

Pcheesewhiz

1

728

Sun Aug 29, 2010 10:05 pm

elyse_peace View the latest post

 


Who is online

Users browsing this forum: No registered users


You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to:  


News News Site map Site map SitemapIndex SitemapIndex RSS Feed RSS Feed Channel list Channel list
Read hundreds of personal Multiple Sclerosis stories on Experience Project. Experience Project is an anonymous community where people connect through their life experiences, made by the same people who built This is MS. With over 30 million personal stories about every possible life experience, you can quickly find people like you!


Interesting: Secret Confessions | Dream Meanings | Ask Questions, Get Answers

Advertise on the premier multiple sclerosis forum