Hi, glad I found this site!

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Hi, glad I found this site!

Postby PENNINA » Tue Aug 05, 2008 4:50 pm

I have visited other sites over the past years on and off, usually when I have an exacerbation, but to be honest with you, I really was not looking for people to bless me or pray for me. Though I know their hearts were in the right place. I just want to be able to feel connected, to talk to others who know what it feels like to have these wierd sx, that only someone else with MS would understand.

I am on Rebif, and found that a lower dose three times a week, rather than the full dose is most tolerable. I am a relativly small person, so one size does not fit all. I have an excellent neuro, but I had to suggest the smaller dose, after doing my own research. I am also blessed with a very smart psychiatrist who understands that it takes work and patients to get the right combination of meds.

I just finished a course of Solumedrol, for a flair up of pain. My old friend Neurontin stopped working well- so I am going to try Cymbalta- anyone else out there tried Cymbalta for burning pain?

Any, happy to share whatever I can.

:)
Penny
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PENNINA
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Postby catfreak » Tue Aug 05, 2008 4:55 pm

Welcome Penny,

I too am on Rebif, I take the full dose.

I think you are right, only another person with MS understands exactly how you feel. This is such a strange disease.

CF
Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
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