hi, all. newbie

New members should feel free to introduce themselves here

hi, all. newbie

Postby sara33 » Tue Jun 02, 2009 7:36 am

hi all. i am new. this is a wonderful place. great job admins:) i'm 33 and have been ms'n it for about 6 years, since shortly after my daughters birth. i've been on all the interferons and copaxone with yucky effect. so i'm signed on to participate in the campath/rebiff trial starting on the 15th. hoping for the campath, b/c i hate rebiff with a passion. i'm married for almost 11 years, have a nine year old son and a 6 year old daughter. and a dog who thinks she's a human. and a cat that thinks he's a dog. i am fortunate enough to be next door neighbors with my sister, who is also one of my best friends. and that's about all. i just thought i should introduce myself, since i have already posted on a few things:)

"I think it pisses God off if you walk by the color purple in a field somewhere and don't notice it. "
Alice Walker [/quote]
User avatar
Family Member
Posts: 30
Joined: Wed May 27, 2009 3:00 pm


Postby jimmylegs » Sun Jun 07, 2009 3:42 am

welcome sara :)
User avatar
Volunteer Moderator
Posts: 11116
Joined: Sat Mar 11, 2006 4:00 pm

Postby peekaboo » Sun Jun 07, 2009 10:21 am

Hi sarah...

I would be sad if one did not notice a purple flower,,,
User avatar
Family Elder
Posts: 623
Joined: Sun Feb 08, 2009 4:00 pm
Location: Arizona

Postby catfreak » Tue Jun 09, 2009 8:12 pm

Hello Sara,

Welcome and I hope you get the Campath too! Rebif sucks!

I am on Tysabri and considered the Campath/Rebif trial. My Neuro was afraid I would get the Rebif and that was out of the question since I had to stop the horrid Rebif shots.

Enough about me!! (ha) You will find many wonderful people hear to share your ups and downs with. We are all in this boat together.

Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
User avatar
Family Elder
Posts: 792
Joined: Sun Jun 01, 2008 3:00 pm
Location: Mississippi

Postby sara33 » Wed Jun 10, 2009 6:17 am

thanks cat. believe me, i know how much the rebif sucks. i was on it once before, and ... well... bled for 6 months. apparently such a rare side effect that they don't even put it on the drug info cardex. i quit taking that crap. i was sooo tired i couldn't get off the couch. my poor five year old learned to fix his own cold hot dog lunches:( i tried it again a few months later- about the same time i tried some new antidepressant and got really itchy pinpoint hives. so we don't know which one caused the hives. i stopped taking both. anyhows.... just keep hopinng for the campath.

how are you liking the tysabri. my neuro before i switched(mds) wouldn't let me try it, (because you're so young and you have young children) he spooked the s--t out of me actually.

thanks for responding, it is nice to talk to people who understand.
blessed day to you!
User avatar
Family Member
Posts: 30
Joined: Wed May 27, 2009 3:00 pm

Return to Introductions


  • Related topics
    Last post

Who is online

Users browsing this forum: No registered users

Contact us | Terms of Service