I´m Carla from Portugal and I´m new to this forum.
My husband has progressive ms and even though he had been diagnosed in August 2011, the first symptoms occurred in 2006. I found this forum 3 months ago, when I was looking for more information about D3 vitamin and I was impressed with all the information shared and how you all help each other. Thank You for sharing!
I don't know if this is the correct topic for talking about my husband's story, if not, please post it in the correct one.
It all started with the loss of strength on the left side of the body intermittently. These symptoms have been going on over 3 weeks. He did an MRI that detected three minor injuries. The doctor did all the possible tests but the diagnosis was inconclusive.
In the begining of 2007 came an horrible pain like an intercostal neuralgia. He could not sleep, we could'nt go anywhere and we've tryed everything for 3 long years to stop that pain. Because of that all the other symptoms that appeared - dizziness, exhaustion, depression,.... - caused by ms were regarded as a consequence of that pain.
We only realized that these symptoms remained, when we could finnaly control that pain. Thus, in August 2011 came the progressive ms diagnosis and my husband did a week of steroids and started treatment with interferon beta-1b.
Because until October 2012 the disease continued to worsen - tiredness and dizziness increasing, difficulty in speech, permanent drowsiness; thinking seriously in buying a cane and in the meantime, for at least 2 years, the cane was I - I began researching alternative treatments. I found the site of Dr. Terry Wahls, bought the book "minding my mitochondria" and in January 1, 2013 we began the new diet, eliminating gluten and dairy, soy, all products with aspartame, MSG and flavor enhancers, food preservatives. Just have not been able to reach the 9 cups of vegetables, cruciferous,...
We've noted improvements in fatigue and strength in the limbs but these improvements were so slow that I started researching about dietary supplements in order to acelerate the results - he started with b12 and coenzime q10.
In February i begin to read about the effects of high doses of d3 in autoimune deseases. I've found several information about the treatment that a brazilian neurologist - Dr. Cícero Coimbra - was accomplishing its patients with high and very high doses of vitamin D3 since the year 2000 and many testimonials from people suffering from MS who are treated with it for years and all of them with remarkable results. I found some groups on facebook and again testimonies of Brazilians who are either at baseline or with months and years of treatment and again with results never before achieved. The first signs of improvement are reflected primarily by the reduction, then elimination of fatigue, increase energy and strength....
Patients with more than 6 months of treatment refer the end of relapses, the MRIs attest the inactivity of injuries and some of them even disappear.
Dr. Cicero Coimbra believes that patients with autoimmune diseases in addition of having insufficient levels of D3 circulating in blood, also have difficulty in the absorption of that vitamin. Therefore, the only way to overcome this obstacle is to treat with high and very high doses.
Due to all that testimony and because the medical explanations made sense, I started looking for doctors in Portugal that could develop a protocol identical to that of Dr. Cicero and found a doctor in Porto (Oporto) - Dra. Cristina Sales - a functional doctor which was last year with Dr. Cicero, learning this "new" treatment and started it in her practice, in October 2012.
When I scheduled the appointment they requested several analyzes, including the 25 (OH) D3 and 1,25 (OH) 2D3. Because of what I read before, my husband was already taking a 1200 units D3 supplement daily since February but the values confirmed a failure:
VITAMIN D- 1,25 - DIHIDROXICOLECALCIFEROL)
R.e .s .u .l .t . . . . . . . . . . . . . . . . . . . . . . . . . 16.1 pg/ml - reference values=18.0 - 78.0
VITAMIN D3 -25 - HIDROXICOLECALCIFEROL
R.e .s .u .l .t. . . . . . . . . . . . . . . . . . . . . . . . . 20.70 ng/ml
My husband started the treatment the 1st. of May and from the 8th day of treatment until now the progresses are daily and stunning.
In December his activity was reduced to 3 hours daily. With the diet of Dr. Terry his activity was increasing progressively and had arrived at 8 hour daily. With the D3, after one week of treatment he began to improve the coordination of movement and now he is almost free of fatigue. He is achieving 16 hours a day, free of sleep. Sleep quality improved horrors. His movements are quick, coordinated. Since last week he can carry two cups of tea with overall balance and agility... These kind of images were forgotten in my mind. I think that there are at least 4 years that he couldn't do any of this litle things.
He is now convinced that the cane is not a must-have anymore.
I know that we have a long journey ahead and we started this protocol only 30 days ago but I've seen in only 30 days what in all these years i've never seen in my best dreams.
These high doses of D3 must be followed by a doctor because excess vitamin can cause irreversible damage to the kidneys.
The treatment requires to drink at least 2,5 liters of water per day and the food should be low in calcium - milk and dairy products are prohibited, as well as soy milk and vegetable drinks enriched with calcium. Also prohibited are the spinach, the greens, the kale and watercress, almonds and hazelnuts.
Smoking is not permitted because the tobacco prevents absorption of vitamin and you can only drink a glass of wine at most 1 time per week.
The meats are not recommended because they contain heterocyclic amines so you must reduce consumption to 2 meals per week tops.
The first consultation of vitamin D3 was followed by a consultation in nutrition in order to adjust the feeding habits of each patient.
We will stay gluten free.
Besides D3, she prescribed DHA Ómega 3; choline bitartrate; b12 and b6; magnesium and a multivitaminic compound. She recommended keeping the coenzime q10.
I'm so, so happy that I need to share this information with the world and because the major testimonies that I've found were in portuguese i'm trying to share it with you, in my basic english.
I found a blog of an Australian lady who makes the treatment with Dr.Cícero Galli Coimbra, with the exact explanation on how this neurologist describes the D3, its performance, and implications and the treatment protocol. My english doesn't allow me that accuracy, so I'll share the link: http://mscure.aussieblogs.com.au/
This video that she shares is also absolutely fantastic: http://www.youtube.com/watch?v=erAgu1XcY-U
- SUBTITLES AVAILABLE IN ENGLISH AND SPANISH
(to activate, click on the first icon on the right bottom of the video)
A big hug full of faith and hope for all of you!