Well I have been officially diagnosed

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Well I have been officially diagnosed

Postby gigi » Thu Jan 21, 2010 6:15 pm

I went to a MS specialist today and was finally impressed by a neurologist. She was very thorough. She had no doubt that I had MS. I guess in a way it is good to know what I am dealing with but now the reality of it is setting in. She is concerned that I have more spinal lesions than the previous neurologist and radiologist thought. Apparently I have a lot of spasticity in my legs. I guess that is what is causing all the aches in my legs? Now I have to repeat the MRI scans because they didn't do it with contrast and they didn't check the thoracic spine. :( I am going to be starting copaxone next week. I have a question regarding my legs for those of you who have issues with your legs...over the past 2 days I am finding that if I lay on my side for very long that my legs "fall asleep". It takes a while for it to get back to its normal slight numbness and burning sensation. Is this normal for MS? I feel like my sx are worsening because I am having more sx, but the doc said it is probably my baseline, because they are coming and going. My palm is constantly numb and frequently burning. I am confused as to what to expect. Am I always going to have these sx .... especially the weakness and EXTREME fatigue. Thanks for any advice.
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Postby dkep11 » Fri Jan 22, 2010 2:17 pm

Hi Gigi

Re your Q "is this normal for MS" - MS is so darn individual that almost everything is 'normal for MS'!l

But - I have also noticed when I sleep, I need to move every half-hour or so, so I don't lock-up.
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Postby Bethr » Fri Jan 22, 2010 3:25 pm

I got the pain/aching in centre of both palms, it kept me awake. I especially got it while sleeping and when I woke up in the morning. I'd massage it a lot and that seemed to help a bit. Had the strange leg symptoms while in bed too.

Of course it's all gone away now after three years of hell and fatigue, such bad fatigue! It took 24 hours to fix it. Damn I'm mad at the medical profession, my neurologist, my doctor the darn lot.

I was iron overloaded. Get it checked out.
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Postby ElMarino » Mon Jan 25, 2010 10:22 am

Hiya Gigi.

Sorry to hear about that.

My advice to someone newly diagnosed would be to read up on high dose vitamin D 10,000 iU +) and MS
Apologies for my terrible username. I never thought I'd use the forum much when I registered..
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