I've had SPMS since 2002-officially. weird unexplained stuff before that. EDSs 3.5 significantly better in the last 2 yrs! I've been on lisinopril that time (for HBP)- maybe it is helping. ( Google: Lawrence Steinman lisinopril) Otherwise I get solumedrol I call it granny speed.
I use a really cool scooter and cane . that keeps my spirits up in the mean time. (I like them because it gives the able bodied a way to talk to me normally)
I'm a science nerd- willing to take risk- but only in a proper clinical trial. That is the only way to really make progress for large numbers of patients.
I've just signed up for a stem cell study at UCSF. Nervous about the lumbar punch but willing to submit my body for torture if it helps find a cure. That includes a good clinical trial for CCSVI. Hoping Dr Dake takes me in his next study too. Will go to Buffalo -if I'm accepted there.
I've been inspired by the stories posted by the pioneers I've read about here.
Thanks You guys. SO MUCH.
looking for 5M miracles from Saint Zamboni's work.