This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
It is currently Wed Jun 19, 2013 7:25 am


All times are UTC - 8 hours [ DST ]




Post new topic Reply to topic  [ 2 posts ] 
Author Message
PostPosted: Wed Feb 08, 2006 10:46 am 
Offline
Getting to Know You...
User avatar

Joined: Sun Feb 05, 2006 4:00 pm
Posts: 11
I am new here and new to LDN. I love it! I feel like I did before my MS Dx in Oct 2000.
My question is this "How much better have you gotten -- more specifically -- is there anyone out there who was bedridden before LDN and are not now??? or who has had substantial gain from this drug.
I know a lady who is bedridden from her MS and living in a nursing home and this drug is the only one so far that I thought may offer a glimmer of hope for her. I have read so much and am trying to gather all the info that I can for her and her husband, but I also do not want to get their hopes up unnecessarily. Can anyone relate some stories here as to how far they have come or know someone who can help me with this.
Desperately looking for hope for Jeannie, she is the dearest sweetest lady that I have ever met. And I do mean LADY very sincerely.
Please Help ME!!! or better yet my friend!!!!
Thank You So Much!
Monica


Top
 Profile  
 
 Post subject:
PostPosted: Fri Feb 10, 2006 5:26 pm 
Offline
Family Member
User avatar

Joined: Sun Oct 24, 2004 3:00 pm
Posts: 28
Location: Greece
Hi.

Have a look at this site:

http://www.ldners.org/

This woman has experienced remarkable recovery on LDN. She was not bedridden but she was on a wheelchair.

Personally, I have experienced noticeable improvement within a few months. I was unable to walk more than a couple of blocks and now I can walk until my feet hurt. I can even run short distance.

I have MS for about ten years. It turned into SP in 2004, when I started getting worse and worse continuously. I used to be in the situation I described above in December 2004. I started LDN in May 2005. The damage done to my CNS was quite recent and this is why I think LDN helped a lot.

Actually LDN does not repair anything. It completely stops inflammation or, at least, drastically decreases it. If not much axonal (beyond repair) damage has already occured, the body will gradually repair it. I don't know the extent of the neuronal damage of your friend. If it is just myelin, LDN will help her a lot. But, anyway, LDN will prevent any further damage, so she 'd better take it.

In addition, the CNS is very plastic. Dead cells do not come back to life but the remaining ones will try to strech so that they reach each other, bypassing damaged regions.

Please correct me if I am wrong. I am no scientist. It is just what I have understood.

I wish the best of luck to you and your friend.

Stavros

_________________
If God created MS, Devil would create Rebif to treat it!


Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  [ 2 posts ] 

All times are UTC - 8 hours [ DST ]


Who is online

Users browsing this forum: No registered users


You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to:  


News News Site map Site map SitemapIndex SitemapIndex RSS Feed RSS Feed Channel list Channel list
Read hundreds of personal Multiple Sclerosis stories on Experience Project. Experience Project is an anonymous community where people connect through their life experiences, made by the same people who built This is MS. With over 30 million personal stories about every possible life experience, you can quickly find people like you!


Interesting: Secret Confessions | Dream Meanings | Ask Questions, Get Answers

Advertise on the premier multiple sclerosis forum