Hello there. Id like to back up and say that I didnt make the claim that no one gets worse on LDN. What I actually said, in context, was "there have been no documented cases of people getting lesions while on LDN". Go ahead and show me that Im wrong. Id love to see it, because as far as i can see, prior to being corrected here, NO ONE ELSE has ever claimed that they have progressed while on LDN.
Having spoken to the authorities at Skips Pharmacy, I am told that its virtually unheard of for anyone to develop the amount of lesions I did in only 10 months on LDN. I asked if they had heard of anyone getting worse on LDN and was told no.
Which is why I asked. I didnt make any claims. I asked.
have RRMS. I was on Rebif for 6 years and progression and lesion free, until I developed NABs (antibodies) to Interferon. I was sick for 6 months before they discovered the reason. I went med free for less than a month when I started LDN. Now, 10 months later, I have over 60 lesions; many of which are on my brain stem, in a most dangerous area. My Neuro is very concerned. I feel terrific. I havent felt this good in 6 years. I have zero clinical symptoms. Im trying to find others who actually think they benefited from LDN therapy, but yet, have still progressed radiographically.
My doctor wants me to add Copaxone to the mix immediately. IM having a hard time wrapping my head around that, as Ive been shot free for the past year, and do not want to deal with the injection site reactions. I was looking for opinions on whether or not LDN alone, has caused anyone else to progress.
I guess I found my answer, so thank you. BUT I have to say, I feel very attacked. My "claim" wasnt a claim, it was a comment made (and then taken out of context). In all the reading I have done, in all the posts I have read, not one person has stated that they have developed new lesions radiographically while on LDN. A few people HAVE claimed that it hasnt helped them and they have stopped it. Lots of complaints that muscle spasms have caused them to stop taking the drug, a few even didnt tolerate the sleeplessness which accompanies getting used to LDN; but NO ONE talks about radiographical progression.
I come here daily hoping to find another person who can tell me if they too, have had radiographical issues with LDN- this is the first post which even suggests that anyone has progressed. According to this post, however, it appears that the poster is having symtom progression~ Im actually also wondering about radiographic progression.