Jake, do you remember this 2007 posting of yours:-
Posted: Tue Nov 06, 2007 5:23 am
It happened again last night. Same time as when it happened before(approx. 1AM), got up to go to BR, walked length of house twice w/ no aid.
Still looking for answers, I found it trawling through old postings – now compare it with mine of Thu Jul 21, 2005
“The thing that puzzles me is that, whilst I need a walking stick if out during the day and can cover only a relatively short distance, from about 7.30 pm there is a marked improvement. Now, this is BEFORE I take my daily ldn. If I went out in the evening with my husband, I would not need the reassurance of the stick.
Even stranger, between 9.30 pm (30 mins. after ldn) and bedtime (around midnight), I can walk a quite brisk ½ mile or more, without any help at all because this improvement increases even more from about 15 minutes after taking my 3mg
I can’t decide if this is because last night’s ldn is wearing off, thus causing my endorphin level to be still falling or because today's 3 mg. is already having an effect. The improvement is wonderful, albeit not a lot of use if you live where, for most of the year, it is dark at that time and the normal working day is finished!”
Have you figured it out yet Jake? I’d really love to know because this is doing my head in. Like Tekla, I have reduced to somewhere between 1 and 2 mg because of dreadful spasticity and I’m using liquid now instead of capsules. I’m terrified to stop altogether because I could not bear the return of the fatigue or the bladder problems.
I have heard that using a transdermal form of ldn removes the spasticity altogether because the ldn is not going through the gut but I cannot find anyone prepared to supply this to someone living outside the US.
Thoughts anyone, particularly anyone who is using ldn without it causing legs to behave like fence posts!