Is there anyone here from the UK that takes LDN?

A board to discuss Low Dose Naltrexone (LDN) as a treatment for Multiple Sclerosis

I've been on LDN for 7 days now.........

Postby Andy » Tue Feb 24, 2004 9:18 am

Hi Everyone, :lol:
That's me been on 3mg LDN for 7 days now and I felt slightly light-headed on day 2 but it soon passed. I was told that could happen and knew it was nothing to worry about. I've been sleeping really well every night. :D

I do feel LESS fatigued than usual and am not bouncing off the walls indoors quite so much, :lol:
I do see slight improvements from day to day, my legs/ankles DO feel stronger and am using my stepping machine more than ever, so I shall continue to take it and see how things progress.
At least there are no negative signs to report, so I am happy with that.
I'll keep you informed. :)

Bye for now
Andy 8)
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LDN

Postby dave richardson » Thu Feb 26, 2004 6:28 am

Hi there

I have been on LDN for 6 weeks now and so far so good my wife does not seem to see any changes in me but I tell her My legs feel stronger and my bladder has started to behave itself

well fingers crossed
Regards from Dave
dave richardson
 

Postby Andy » Tue Apr 27, 2004 12:56 pm

Hi all :D
Well I've been on LDN now for 69days and although I haven't thrown away my two walking sticks ( I still need them both) I feel allot better in my self.
I received a reply from the health minister for which I took to my gp and guess what he wrote me out a script for LDN on the NHS, I even told the pharmacy where to get it after speaking to Martindale Pharmaecuticules myself. (sorry about the spelling ) now taking LDN supplied from the UK.

I have also had two letters back from the MS Society implying that they have now contacted a scientist involved in this research and that a controlled trial is long overdue so hopefully things will start to move to the benefit of us all. It will either prove LDN to be a benefit or knock it dead......but how can you ignore all this anecdotal evidence?????

ps.. I have also heard some good reports on this new goat serum...but time will tell for us all.

pps. I have amalgam dental fillings (mercury) and this is my next step to get them removed safely....SAFELY being the operative word.../

regards to you all ..live well you are only here once. 8)
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Postby Arron » Tue Apr 27, 2004 1:13 pm

Always good to hear from you Andy, keep feeling good! Please continue to keep us updated on your experience.
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LDN update

Postby Andy » Fri Sep 24, 2004 1:41 pm

:D Hi all, well I've now been on LDN for 221 days and although my PPMS is still there all the time the pains in my ankles/feet are a lot less and I can go through the night without going to the bathroom for a pee.
Even with the above benefits I feel that my MS has got slightly worse, I find it slightly harder to walk but I'm sure it would have been a lot worse if I hadn't tried LDN.
I've just got back from Vacation to Scotland and I drove there and back, just over 1000miles in total (I've had hand controls fitted to my car). Two weeks before that I was in the Canary Islands for a holiday, I am determined not to let this monster stop me from enjoying my life. Have wheelchair will travel is my motto......:D 8)


Andy
Last edited by Andy on Wed Sep 29, 2004 3:29 pm, edited 1 time in total.
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Hi Andy...

Postby JoyceF » Sat Sep 25, 2004 8:50 am

I am so glad to hear you being so positive but I'm a bit disturbed by your report that you think that you are still progressing with your MS while on LDN. Can I ask you where you are getting your LDN compounded? Not sure why but I think this is the single most important factor.
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Postby Andy » Wed Sep 29, 2004 12:48 pm

Hi Joyce, I am on LDN 3mg dose with a calcium carbonate filler and it was supplied to me from the Compounding Center in Wisconsin.
However, I'm now getting my LDN from the UK but I have yet to start on their supply, perhaps I ought to change now to see if there is any difference?

On thinking more about it I think I will change over to my new supply tonight, I dare say I will not see any difference for a few days but here's hoping....will keep you informed.

Don't get me wrong. I find that since being on LDN the pains that were in my ankles and feet are now only a memory and thats where I want it to stay....and I no longer need to go to the bathroom for a pee in the night. ( used to be 4 or 5 times)
These two improvements alone have given me some sort of life back and I intend to make use of it hence my motto...have wheelchair will travel.
Andy 8) 8) 8) 8) :lol:
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