This Is MS Multiple Sclerosis Community: Knowledge & Support

Hi Everyone,
That's me been on 3mg LDN for 7 days now and I felt slightly light-headed on day 2 but it soon passed. I was told that could happen and knew it was nothing to worry about. I've been sleeping really well every night.

I do feel LESS fatigued than usual and am not bouncing off the walls indoors quite so much,
I do see slight improvements from day to day, my legs/ankles DO feel stronger and am using my stepping machine more than ever, so I shall continue to take it and see how things progress.
At least there are no negative signs to report, so I am happy with that.
I'll keep you informed.

Bye for now
Andy

Hi there

I have been on LDN for 6 weeks now and so far so good my wife does not seem to see any changes in me but I tell her My legs feel stronger and my bladder has started to behave itself

well fingers crossed
Regards from Dave

Hi all
Well I've been on LDN now for 69days and although I haven't thrown away my two walking sticks ( I still need them both) I feel allot better in my self.
I received a reply from the health minister for which I took to my gp and guess what he wrote me out a script for LDN on the NHS, I even told the pharmacy where to get it after speaking to Martindale Pharmaecuticules myself. (sorry about the spelling ) now taking LDN supplied from the UK.

I have also had two letters back from the MS Society implying that they have now contacted a scientist involved in this research and that a controlled trial is long overdue so hopefully things will start to move to the benefit of us all. It will either prove LDN to be a benefit or knock it dead......but how can you ignore all this anecdotal evidence?????

ps.. I have also heard some good reports on this new goat serum...but time will tell for us all.

pps. I have amalgam dental fillings (mercury) and this is my next step to get them removed safely....SAFELY being the operative word.../

regards to you all ..live well you are only here once.

Always good to hear from you Andy, keep feeling good! Please continue to keep us updated on your experience.

Hi all, well I've now been on LDN for 221 days and although my PPMS is still there all the time the pains in my ankles/feet are a lot less and I can go through the night without going to the bathroom for a pee.
Even with the above benefits I feel that my MS has got slightly worse, I find it slightly harder to walk but I'm sure it would have been a lot worse if I hadn't tried LDN.
I've just got back from Vacation to Scotland and I drove there and back, just over 1000miles in total (I've had hand controls fitted to my car). Two weeks before that I was in the Canary Islands for a holiday, I am determined not to let this monster stop me from enjoying my life. Have wheelchair will travel is my motto......


Andy

I am so glad to hear you being so positive but I'm a bit disturbed by your report that you think that you are still progressing with your MS while on LDN. Can I ask you where you are getting your LDN compounded? Not sure why but I think this is the single most important factor.

Hi Joyce, I am on LDN 3mg dose with a calcium carbonate filler and it was supplied to me from the Compounding Center in Wisconsin.
However, I'm now getting my LDN from the UK but I have yet to start on their supply, perhaps I ought to change now to see if there is any difference?

On thinking more about it I think I will change over to my new supply tonight, I dare say I will not see any difference for a few days but here's hoping....will keep you informed.

Don't get me wrong. I find that since being on LDN the pains that were in my ankles and feet are now only a memory and thats where I want it to stay....and I no longer need to go to the bathroom for a pee in the night. ( used to be 4 or 5 times)
These two improvements alone have given me some sort of life back and I intend to make use of it hence my motto...have wheelchair will travel.
Andy