This Is MS Multiple Sclerosis Community: Knowledge & Support

**Posted:** Sun Jul 22, 2012 3:20 pm

Greetings,

I am wondering if anyone has any experience with being on both immunosuppresant MS medication and CAP, particularly in the first few months when improvements may not yet be apparent?

I have been on Gilenya (fingolimod) for about 15 months, but happened to start doxy for another issue and felt immediate improvement in my symptoms and disability. I believe that doxy is a strong immunomodulator, so it may be working alongside the Gilenya.

Still, ...

**Posted:** Tue Apr 24, 2012 10:21 pm

Hello thisisms,
This is my first time posting. I have questions specifically about antibiotics below, but there is a long background in between if anyone wants to read it!

Two years ago I developed demyelination after a combined hep A/hep B vaccination.

My symptoms are quite atypical of MS - They all occurred initially within a couple of weeks after my vaccinations, and have been abating and recurring intermittently ever since.
Head problems: Pressure in ...

**Posted:** Tue Apr 17, 2012 4:19 am

Trepidation. That's what I feel at the moment. My wife (L) just started ABX's last night, on the kind advice of Dr Wheldon and we don't know what's in store. So many questions - mainly rhetorical - why didn't I find this treatment earlier? Will it work? Where are the stories from people who didn't benefit from this treatment, just for the sake of balance? Did I source the best supplements? Have I organised timings ...

**Posted:** Thu Mar 15, 2012 1:44 pm

Recurrent Clostridium difficile infection

By Mayo Clinic staff

Quote:

"Clostridium difficile (klos-TRID-e-uhm dif-uh-SEEL), often called C. difficile or C. diff, is a bacterium that can cause symptoms ranging from diarrhea to life-threatening inflammation of the colon. Illness from C. difficile most commonly affects older adults in hospitals or in long term care facilities and typically occurs after use of antibiotic medications.

In recent years, C. difficile infections have become more frequent, more severe and more difficult ...

**Posted:** Fri Feb 24, 2012 10:39 pm

Hi everyone,
My husband was diagnosed three years ago with RRMS. His MRI last week showed new lesions and he is having more symptoms, severe fatigue, foot drop, weak extremities, visual difficulties and falling frequently. I spoke with Dr. Stratton and had our neuro run the test for the CPn and his level was 1:128. He is reluctant to try the abx but I think it might help. Please I am desperate. We have two ...

**Posted:** Tue Feb 14, 2012 4:30 pm

I'm wondering if anyone here knows anything about this? (specifically about hypertension)

I have been taking (NAC) N Acetyl Cysteine for OCD treatment as an NDMA antagonist, and it seems to work pretty well. I am taking 600mg every six hours. Is is safe to up my daily dosage to 3600 mg? The very first time I took it I felt a kick after about 30 minutes. It doesn't appear to work the full six ...

**Posted:** Mon Jan 30, 2012 6:40 am

Hello everyone,
Im several months in the "grey" zone, i dont have definitive diagnosis but I have a lot of MS symptoms for almost 1 year - fingers numbness, tingling in arms and legs, muscle weakness, tinnitus, nystagmus... I had MRI in October 2011, there was only 1 very small lesion (up to 3mm) in atypical area for MS (my neurologist said), lumbar puncture, VEPs, EMG, EEG were clear. My lyme literate immunologist thought I ...

**Posted:** Fri Jan 13, 2012 1:33 pm

Copied from General Interest, where I put it first:

Here is a paper just published in Phlebology and Phlebology-Online by the Australian Phlebologist, Paul Thibault, who started off treating ccsvi for people with MS but then realised that There was more to MS since most people relapsed very quickly:
http://www.cosmeticcentre.com.au/client_images/1043332.pdf. He now treats MS people who are shown to have ccsvi with antibiotics from Charles Stratton from Vanderbilt University's Combined Antibiotic Protocol and is having ...

**Posted:** Wed Dec 28, 2011 12:47 pm

Does any one know how ibprophen or tylenol reacts to ms?

**Posted:** Tue Dec 27, 2011 6:08 am

Hello everyone,
I have PPMS and live in NYC. My neuro and internist are supportive of me starting ABX treatment, but I can not find anyone who has prescribed the protocol before and who is comfortable with the stages and/or side effects.
First question- have you heard of a dr that treats in Manhattan or NYC?
I did get my CPN load checked by a blood test and Dr. Stratton said it was 'high', but ...

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