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A board to discuss the Multiple Sclerosis modifying drug Avonex

Just took myself off Avonex

I found the side effects were getting worse and worse after 8 weeks. I also had signs of hypothyroid: Temp 96.2, feeling of heat, but skin cold and dry to touch, enlarged tongue, weight gain, hair loss. And that awful achy feeling - 24/7, 7 days a week.

I tried to call the people at Avonex, but could not get through. I tried 7 times to find what to do for all this. NSAIDS stopped ...
Read more : Just took myself off Avonex | Views : 588 | Replies : 0


Brain volume changes in patients with relapsing-remitting MS

Brain volume changes in patients with relapsing-remitting MS treated with Interferon Beta-1a

The reductions in brain volume often seen in patients with chronic relapsing–remitting multiple sclerosis may be reduced by treatment with interferon beta-1a, though treatment may be affected by the patient’s immunologic status, according to data presented by Michael G. Dwyer, PhD, at the 2014 Annual Meeting of the Consortium of Multiple Sclerosis Centers (CMSC) and the Sixth Cooperative Meeting with Americas Committee for ...
Read more : Brain volume changes in patients with relapsing-remitting MS | Views : 347 | Replies : 1


Muscle loss from Avonex??

Hello everyone.
My name is Mariana I am 29 years old and I was diagnosed with MS 5 years ago. I've have been taking avonex 4 years ago and I have had only one relapse and that was how I was diagnosed with ms.
I was injecting the avonex on my gluteus, until I recently got the avonex pen last month. Now I am injecting the shots in my legs as requested for the doctor. ...
Read more : Muscle loss from Avonex?? | Views : 688 | Replies : 0


Hearing a lot of negativity with Avonex?

I am a recent user of Avonex (6 Mths) and I am very pleased with the results today. I did have severe attacks of pain ( seizures ) in my right side, the second and third months of its use. My Neurologist stated it was a side effect some users get and I really got it bad. The seizures happened two or three times a week during that time.
All of a sudden there were ...
Read more : Hearing a lot of negativity with Avonex? | Views : 917 | Replies : 2


Thinking of Quitting Avonex.. HELP.

Hello everyone. I'm 20 and I have been on Avonex since I was 14 years old. I've always had a fear of needles and when I was first diagnosed I was lucky enough to have a nurse who made me a little less scared. But now that I'm doing injections at home, I have been more weary and scared, again. My best friend comes over every week while I do my shot to try and ...
Read more : Thinking of Quitting Avonex.. HELP. | Views : 781 | Replies : 6


From Rebif to Avonex

Hi everyone,
In May I had moved over to Avonex after 3 months on Rebif the year before.
Just for info - my previous post :
rebif-f6/topic19616.html#p218462
Cheers,
Fred
Read more : From Rebif to Avonex | Views : 641 | Replies : 2


bloating

I have been on Avonex since Jan and I have had the worst bloating. At first I thought I was gaining weight but its more of a bloating/puffy feeling.

Anyone feel this on Avonex?
Read more : bloating | Views : 734 | Replies : 0


Temporarily stopping Avonex

Hi all,

my wife has been taking Avonex since 1999. In that time she's slowly gone from R-R to secondary. Currently the Avonex is well tolerated. However, recently we've had a couple of nasty incidents, where a UTI has flared up in a couple of hours, leading to a fever of 104. Last time, A&E doctor commented that the Avonex will mean infections can start unnoticed - until it's too late.

Has anyone temporarily stopped ...
Read more : Temporarily stopping Avonex | Views : 642 | Replies : 2


Leg pain

I've been injecting avonex for over 5 years. 9 days ago I injected in the top of my thigh as usual - I've had progressive leg pain ever since. I am having trouble lifting my leg and walking in a strange way. Anyone got any ideas what I might have done? Surely it should be this painful? I've injected since in the other leg and with no problems

On another note I still get side ...
Read more : Leg pain | Views : 815 | Replies : 1


Vastly decreased injury recovery with Avonex?

I have been taking Avonex since July 2012. In January 2012 I suffered a toe injury doing karate which ended up resulting in needing a minor arthroscopy to clear out some mess in the joint. That happened in December 2012. Typical recover time is 3-6 weeks. It's now 6 months later, and while it no longer feels "injured" in the sense of there being anything wrong with the joint, it just hurts whenever I use ...
Read more : Vastly decreased injury recovery with Avonex? | Views : 902 | Replies : 3


 

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