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A board to discuss the Multiple Sclerosis modifying drug Avonex

My Side Effects Are Getting Worse

Hi all!

I was diagnosed with MS February 13th 2012. The doctor prescribed Avonex. When I first started taking the injections I got the typical side effects: headaches, body-aches, chills, my body is cold (especially my hands and feet), feeling faint or flushed, dizziness/vertigo. Some injection days I would vomit while most injection days I would not.

The problem: I've been on Avonex for around 10 months now and for the the last 3 or ...
Read more : My Side Effects Are Getting Worse | Views : 3790 | Replies : 5

Experiencing severe reactions from Avonex

Is there anyone out there that has severe symptoms from the Avonex pen injections? I really could use some support. The Avenox pharmacist is a wonderful person to bounce questions off of, but I need someone to keep in contact with. I am experiencing tearfulness, sadness, aches, pains, and a feeling of isolation, which lasts 3-6 days. :sad:

The pharmacist informed me that I sound like I ...
Read more : Experiencing severe reactions from Avonex | Views : 4106 | Replies : 9

Severe reaction to Avonex after eight years

Has anyone ever heard of someone having a severe reaction to Avonex after successful prolonged use? I have taken Avonex for eight years, and except for the usual side effects, everything was great. That all changed last week when I developed a serious reaction after taking my shot. I developed very severe hives that covered my entire body. The ER Dr's said they had never seen hives so bad. Their opinion was that Avonex was ...
Read more : Severe reaction to Avonex after eight years | Views : 3562 | Replies : 2

Newbie to ThisIsMS and about to start Avonex

I was diagnosed with CIS last year after having an episode of double vision (and an MRI) and have been struggling with the decision to start drugs which were recommended to me the day I was diagnosed. However, after my MRI got worse (giving me the "official" MS diagnosis) and I received a second opinion from another MS specialist who also recommended drug therapy I have decided to start. BUT, I am PETRIFIED about ...
Read more : Newbie to ThisIsMS and about to start Avonex | Views : 2628 | Replies : 3

Just starting

But I chose Avonex for the convenience. I'm hoping the side effects don't outweigh the benefits. I started with Copaxone, but the daily injections coupled with the injection site reactions were enough to decide to stop after only 3 months.

So today was my fist dose... The titration. I guess we'll see how my body handles it. I've read that the most common are flu-like symptoms and depression. I'm sure they're more, but those are ...
Read more : Just starting | Views : 2526 | Replies : 3

Going Off of Avonex after being on it for 11 years

I have been on avonex since 2000. I have done really well with it, except since October of last year, my systems started up again and they have not gone away. My neurologist thinks the Avonex is no longer working for me. He told be to stop the Avonex, I have one shot left and they are suppose to be calling me to set me up on Tysabri. It is now 5 days since I ...
Read more : Going Off of Avonex after being on it for 11 years | Views : 3031 | Replies : 2

Working full time?

I read posts on dealing with Avonex side effects. I would like to hear from people who take Avonex and also work full time. I struggle with the side effects--but I am working many hours a week. I wonder if I am having a harder time because of that. If I can sit and do almost nothing for 36-48 hours, my week goes much better. If I have to try to keep going the day ...
Read more : Working full time? | Views : 2855 | Replies : 4

Coming off Avonex after 8 years of use (!!)


I am 24 years old and live in Canada. I was diagnosed with MS after having my hepatitis B vaccine at the age of 15, when my right side became extremely "heavy" and I could barely move it (my right arm, leg, right side of my face etc.).

6 months after this "attack", I had another one in my left side, where it became cold (not physically to the touch, but it felt like ...
Read more : Coming off Avonex after 8 years of use (!!) | Views : 5044 | Replies : 4

Hair loss on Avonex

Hi there,
I've just begun taking Avonex - I've taken my third injection and have noticed that I am losing a lot of hair (I actually noticed this from the first week). I haven't lost clumps of hair, or seen any bald spots on my scalp, but the increase in hair loss is definitely noticeable. I just wanted to know whether anyone else has experienced this,and whether this will subside soon, or is it going ...
Read more : Hair loss on Avonex | Views : 5015 | Replies : 9

after what time?

Hi everybody. I switched from Tysabri to Avonex. Could you please tell me after what time of taking it I could feel a bit better? 1 INJECT aVONEX once a week. yesterday I had my 10th injection ('s 2,5 months already). I am not sure if Avonex works for me...
Read more : after what time? | Views : 3292 | Replies : 2


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