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A board to discuss the Multiple Sclerosis modifying drug Avonex

Coming off Avonex after 8 years of use (!!)


I am 24 years old and live in Canada. I was diagnosed with MS after having my hepatitis B vaccine at the age of 15, when my right side became extremely "heavy" and I could barely move it (my right arm, leg, right side of my face etc.).

6 months after this "attack", I had another one in my left side, where it became cold (not physically to the touch, but it felt like ...
Read more : Coming off Avonex after 8 years of use (!!) | Views : 6901 | Replies : 4

Hair loss on Avonex

Hi there,
I've just begun taking Avonex - I've taken my third injection and have noticed that I am losing a lot of hair (I actually noticed this from the first week). I haven't lost clumps of hair, or seen any bald spots on my scalp, but the increase in hair loss is definitely noticeable. I just wanted to know whether anyone else has experienced this,and whether this will subside soon, or is it going ...
Read more : Hair loss on Avonex | Views : 6722 | Replies : 9

after what time?

Hi everybody. I switched from Tysabri to Avonex. Could you please tell me after what time of taking it I could feel a bit better? 1 INJECT aVONEX once a week. yesterday I had my 10th injection ('s 2,5 months already). I am not sure if Avonex works for me...
Read more : after what time? | Views : 4547 | Replies : 2

Ughh horrible

i have been on avonex for 3 months now, after being taken off rebif. I honestly feel worse on the shots than i did when i wasnt on them. I have had more problems walking, talking, thinking, everything. Needless to say, today i decided to stop the shots, at least for a while. So many people have called me stupid for this decision. MS is hard enough to deal with. I dont need shots making ...
Read more : Ughh horrible | Views : 4589 | Replies : 4

Daughter in law with MS

I have a daughter in law with MS and her doctor prescribed Avonex. The next day she needed a cain to walk. I have been trying to get her to try Dr. Swanks diet but for some reason she would rather do the drugs. I am trying to understand why? Everything I have seen shows the drugs do not work. Does anyone have a study showing these drugs work? Is it just believing the doctor ...
Read more : Daughter in law with MS | Views : 3849 | Replies : 0

Side effects?

I've been on Avonex for 4 months. After shot, every Saturday I feel terrible, like a bus hit me. I don't have any strentgth to get up from my bed. And all Saturday I have big numbness in my right hand (like relapse). I can't to use this hand. I can't hold a pen.
But on Sunday I feel good and my right hand is good.
I don't know what thinking about my right ...
Read more : Side effects? | Views : 4917 | Replies : 10

Genetic sensitivity to interferon-beta

My father recently had a DNA profile done and one of the traits that came back was a significantly increased sensitivity to interferon beta.

"This study examined 199 patients from Spain with clinically diagnosed relapsing-remitting multiple sclerosis who had received interferon beta treatment for at least two years. The authors classified patients as “non-responders” if, over the two year period of interferon beta treatment, they had two or more disease relapses, or if their Expanded ...
Read more : Genetic sensitivity to interferon-beta | Views : 3803 | Replies : 1

Mixed results seen for immediate MS treatment


Multiple sclerosis patients had fewer relapses with immediate treatment of clinically isolated disease but no improvement in disability outcomes, data from a randomized trial showed.

Patients who received immediate treatment with interferon had a 36% lower 10-year odds for progression to clinically definite MS and lower relapse rates at five and 10 years.

However, disability scores, MRI-visible lesions, and the rate of progressive disease at 10 years all did not differ between patients randomized ...
Read more : Mixed results seen for immediate MS treatment | Views : 3966 | Replies : 0

Avonex side efects two times in the week


I'm writing from Poland. Sorry for my English.
My girl started Avonex 3 months ago. She always takes shot on Friday evening. Then later and all Saturday has always side effects. She takes something like Tylenol or Advil. Next day - on Sunday always everything is good.
Now I'm writing problem, something what disturb us. Sometimes (two - three times in month) in one day since Monday do Thursday she has come back side ...
Read more : Avonex side efects two times in the week | Views : 3844 | Replies : 2


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