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A board to discuss the Multiple Sclerosis modifying drug Betaseron


Betaferon/betaseron side effects

Hello guys,
I'm new to this forum, actually I'm very new to this forum. I have a question about my medicine. I am injecting myself every other day with Betaferon (not sure if it's the same as Betaseron) and I think my hair is thinning because of it.
I was diagnosed 28th December 2011 (Merry Christmas!) and have been using Betaferon since then. My hair has been thinning slowly but steadily since then and the ...
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Consequences of missing doses?

So, I've been on Betaseron for 9 years. Thus far, I've done pretty well with it- I have no disability, and relatively light symptoms of the disease. However, I go through periods where I'm not very compliant with doing my injections. It can be easy to just blow it off, mainly due to their being no immediate consequences if you do miss a dose. I'm curious about a couple things...I've been kind of bad lately- ...
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Treatment follow-up reveals positive results for MS patients

Results from the BENEFIT11 trial has found that early treatment with IFNB-1b leads to improvements in cognition and fatigue in the long-term, as well as sustained employment and favourable magnetic resonance imaging (MRI) outcomes, measured at the 11-year mark, according to the study Long-Term Impact Of Early MS Treatment With Interferon Beta-1b: Clinical, MRI, Employment And Patient-Reported Outcomes (PROs) at the 11-Year Follow-up of BENEFIT (BENEFIT 11)...... Read More - http://www.ms-uk.org/betaferon
Read more : Treatment follow-up reveals positive results for MS patients | Views : 1497 | Replies : 0


Treatment at the first sign of illness improves MS: Study

A long-term study following multiple sclerosis (MS) patients taking interferon beta-1b, suggests the earlier therapy is started, the greater the benefit..... Read More - http://www.ms-uk.org/betaferon
Read more : Treatment at the first sign of illness improves MS: Study | Views : 1471 | Replies : 0


After 5 months, should I feels so 'icky' on beteserone??

Hi

History: Had chemo for breast cancer last year. JC positive. This limits the MS drugs I can take.

This question dawned on me late last night so I thought I would pose it to you guys.

I have been on Betaseron for 5 months. I feel crappy everyday. I'm not talking about the flu-like symptoms you can get after each shot. (I don't get those anymore) So, last night, I was trying to remember ...
Read more : After 5 months, should I feels so 'icky' on beteserone?? | Views : 4741 | Replies : 5


Betaseron & Lupus Risk !!!! ???

I was on Betaseron from August 2011-June 2012.

My new neuro has informed me that Betaseron use has a risk of producing Lupus!!

But, a secondary 'advantage' of having Lupus, is that the meds used to treat Lupus, actually are better choices for treatment of MS?!?!?!

BUT, MS drugs are bad for setting off other diseases, like LUPUS!

Oddly enough, in the 2 years it took for my docs to Dx. me with MS, I ...
Read more : Betaseron & Lupus Risk !!!! ??? | Views : 1924 | Replies : 0


Betaseron & Cessation of Kidney Stones on Treatment!!

I have had Kidney stones about every 8 weeks since 1997. Sadly, they were 'normal' to me...I had a urologist tell me, 'there is nothing you can do about stones, just get use to having them!' (yes, there are Jerk doctors out there!)

Thankfully, patients READ!! and can become educated about their conditions, and, learn that some doctors stop reading, and are not interested in advocating for patient quality of life, as that urologist did ...
Read more : Betaseron & Cessation of Kidney Stones on Treatment!! | Views : 2506 | Replies : 3


Male Reproduction

Greetings!! I hope this is does not come across as me being rude or anything. I am A 35 beteseron guy! The wife and I are trying to conceive. I have been reading that beteseron may affect the mans sperm count. A lot of what I see is all positive women related items with some mixed in woman problems via google. I am freaking out, because I want to give us the best chance possible. ...
Read more : Male Reproduction | Views : 2483 | Replies : 1


How do you get Betaseron without insurance?

Our household income exceeds the income requirements for the patient assistance programs. Are there any other options besides paying the full amount out of pocket? The meds would still cost more than a 1/3 of what we make!
Read more : How do you get Betaseron without insurance? | Views : 3054 | Replies : 4


 

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