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A board to discuss the Multiple Sclerosis modifying drug Betaseron

After 5 months, should I feels so 'icky' on beteserone??


History: Had chemo for breast cancer last year. JC positive. This limits the MS drugs I can take.

This question dawned on me late last night so I thought I would pose it to you guys.

I have been on Betaseron for 5 months. I feel crappy everyday. I'm not talking about the flu-like symptoms you can get after each shot. (I don't get those anymore) So, last night, I was trying to remember ...
Read more : After 5 months, should I feels so 'icky' on beteserone?? | Views : 3567 | Replies : 5

Betaseron & Lupus Risk !!!! ???

I was on Betaseron from August 2011-June 2012.

My new neuro has informed me that Betaseron use has a risk of producing Lupus!!

But, a secondary 'advantage' of having Lupus, is that the meds used to treat Lupus, actually are better choices for treatment of MS?!?!?!

BUT, MS drugs are bad for setting off other diseases, like LUPUS!

Oddly enough, in the 2 years it took for my docs to Dx. me with MS, I ...
Read more : Betaseron & Lupus Risk !!!! ??? | Views : 909 | Replies : 0

Betaseron & Cessation of Kidney Stones on Treatment!!

I have had Kidney stones about every 8 weeks since 1997. Sadly, they were 'normal' to me...I had a urologist tell me, 'there is nothing you can do about stones, just get use to having them!' (yes, there are Jerk doctors out there!)

Thankfully, patients READ!! and can become educated about their conditions, and, learn that some doctors stop reading, and are not interested in advocating for patient quality of life, as that urologist did ...
Read more : Betaseron & Cessation of Kidney Stones on Treatment!! | Views : 1465 | Replies : 3

Male Reproduction

Greetings!! I hope this is does not come across as me being rude or anything. I am A 35 beteseron guy! The wife and I are trying to conceive. I have been reading that beteseron may affect the mans sperm count. A lot of what I see is all positive women related items with some mixed in woman problems via google. I am freaking out, because I want to give us the best chance possible. ...
Read more : Male Reproduction | Views : 1494 | Replies : 1

How do you get Betaseron without insurance?

Our household income exceeds the income requirements for the patient assistance programs. Are there any other options besides paying the full amount out of pocket? The meds would still cost more than a 1/3 of what we make!
Read more : How do you get Betaseron without insurance? | Views : 2077 | Replies : 4

Anyone looking for 3months supply of Betaferon?

I have 3 months/boxes of 15 injections of Betaferon 250microgram/ml due to change of treatment. Exp date 10.2013 Reply if interested, thx
Read more : Anyone looking for 3months supply of Betaferon? | Views : 2441 | Replies : 0

Betasaron....Joint Pain

Has anyone else on here experienced joint pain with Betasaron. After a few injections I started hurting on the same leg my foot drop had previously been on. My ankle and knee....and then my elbow started having pains. Got checked for a UTI and did not have one.
Read more : Betasaron....Joint Pain | Views : 2243 | Replies : 0

Benefit seen with interferon lasts into progressive MS


Patients with primary progressive multiple sclerosis (PPMS) who took interferon-beta-1b for two years in a randomized trial continued to show improvement relative five years later, Spanish researchers said.

Although the patients received no further interferon treatment after the randomized trial ended, those who had taken the drug during the study had both better scores for functional outcomes and better MRI evaluations at follow-up than those who had been treated with placebo, according to Xavier ...
Read more : Benefit seen with interferon lasts into progressive MS | Views : 2884 | Replies : 3

Knots after injection

I get a lot of "knots" after I inject. I take Ibuprofen an hour before I inject, I use the Betaject and I massage the area right after, but I get these knots that last sometimes for many days. And they can be quite painful as well. Any suggestions would be most appreciated. Thanks.
Read more : Knots after injection | Views : 2405 | Replies : 0

Betaseron overseas?

Has anyone living in the US ever had to order Betaseron while traveling overseas? If so, how did you get it in another country? Is it cheaper in Europe? I called Betaseron and they said they only thing to do would be to have it shipped to someone in the US and they can personally ship it to wherever I am overseas, but I don't want to ask someone to take the responsibility for $4K ...
Read more : Betaseron overseas? | Views : 1722 | Replies : 4


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