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A board to discuss the soon-to-be released drug Campath as a treatment for Multiple Sclerosis

David's story update

David is a Campath recipient who set up a website to share his experience. Partly as a result of his diary I went for the Campath option. David has updated his diary - May 2009 update. Thankfully, he has nothing to report and seems to be doing very well.
Read more : David's story update | Views : 1534 | Replies : 0

possibly joining the ranks of campath testers...

hello all. i'm sara, 33... i will find out on the 15 of june if i get the campath or the rebiff. i'm actually hoping for the camp. as i've been on rebiff before with nothing good of it... hence why i stopped taking it. actually i've been on everything that you can inject into yourself... but keep having these crazy relapses. so my doc suggested this trial. why not? ...
Read more : possibly joining the ranks of campath testers... | Views : 1413 | Replies : 3

My Campath Story

WOW, what an interesting but very stressful journey to finally get to this point! The short version of the story is that I was a Tovaxin lab rat who received Tovaxin during the 1 year of the Phase IIb trial and then 4 out of 5 vaccinations in the extension phase before Opexa ran out of money and shut the study down. At that point it seemed like the obvious thing to do was enter ...
Read more : My Campath Story | Views : 3103 | Replies : 11

Any updates?

Any updates/reports from the Campath recipients?
Read more : Any updates? | Views : 1369 | Replies : 1

I have a decision to make

I am unsure what to do about the Phase 3 Alemtuzumab study. I have been approved for it, but have not yet done the Screening and Baseline visits. They made some changes to it on 3/5/09, and now I would have a 1 - 3 chance of being radomized into the Rebif group, when before it was 1 - 5.

I am almost 50 years old. Yikes, I've never seen that in print, if ...
Read more : I have a decision to make | Views : 1308 | Replies : 2

one week after campath

I went into the Neuro's office today, 'cause I just can't get my legs to work right. They're super duper spastic and the dropped foot is way worse. The team was supportive, they gave me some different drugs to try for the spasticity and some oral steroids to see that if that didn't help me feel better and get walking better sooner. Tomorrow I have to go back to work so I was nervous about ...
Read more : one week after campath | Views : 1843 | Replies : 5

Second Campath infusion

I detailed the experience @ under my blog, it's public so read it if you're interested. The 3rd and final infusion was on Wednesday. Thursday I woke with the rash; and had my mom around all day in case I needed her. Really I just wanted to rest. Today another rash but it didn't return as fierce as usual, 4 hours after the last benadryl. I continue to ...
Read more : Second Campath infusion | Views : 1364 | Replies : 1


Freiguy, if you happen to be checking in, I sent you a PM.
Read more : Freiguy.... | Views : 1276 | Replies : 0

second dose day two

I have in IV in my right wrist, so it is hard for me to type. Therefore, I not sure how long this post will be. Yesterday the infusion went ok. Although, I went into vagus shock during the IV insertion and passed out ( my blood pressure also dropped in half). But after that is was pretty smooth sailing. Kristin and I had some serious headaches. I also had a stomach ache and some ...
Read more : second dose day two | Views : 1265 | Replies : 0

Second dose.....tomorrow

Well Kristin and I go for our second dose of Campath tomorrow. It has almost been one year to date since our last infusion. Our MRIs showed good things. No progression in mine, and I think Kristin's even showed some improvement. It has been stressful trying to prepare for tomorrow. In fact , Kristin and I both feel like we are having a mini flare up.

Yesterday I made sure to fit in some fun ...
Read more : Second dose.....tomorrow | Views : 1470 | Replies : 3


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