This Is MS Multiple Sclerosis Community: Knowledge & Support

**Posted:** Wed Jun 03, 2009 4:48 pm

So I needed to switch tx after 4 years on copaxone. Doc recommended I choose between tysabri and Campath, as he is involved in the study. It was a really hard decision, especially since I was dead set against taking an interferon. The research nurse said that if I was randomized onto the rebif I could drop out. So I went thru the entire process, then on randomization day - hooray!!!
I got my five ...

**Posted:** Tue Jun 02, 2009 7:13 am

http://www.forbes.com/feeds/ap/2009/06/ ... 91891.html

**Posted:** Fri May 29, 2009 4:32 am

David is a Campath recipient who set up a website to share his experience. Partly as a result of his diary I went for the Campath option. David has updated his diary - May 2009 update. Thankfully, he has nothing to report and seems to be doing very well.

http://www.davidscampathstory.org/experience.html

**Posted:** Thu May 28, 2009 8:15 pm

hello all. i'm sara, 33... i will find out on the 15 of june if i get the campath or the rebiff. i'm actually hoping for the camp. as i've been on rebiff before with nothing good of it... hence why i stopped taking it. actually i've been on everything that you can inject into yourself... but keep having these crazy relapses. so my doc suggested this trial. why not? ...

**Posted:** Mon May 18, 2009 1:46 pm

WOW, what an interesting but very stressful journey to finally get to this point! The short version of the story is that I was a Tovaxin lab rat who received Tovaxin during the 1 year of the Phase IIb trial and then 4 out of 5 vaccinations in the extension phase before Opexa ran out of money and shut the study down. At that point it seemed like the obvious thing to do was enter ...

**Posted:** Sun May 17, 2009 6:44 pm

Any updates/reports from the Campath recipients?

**Posted:** Thu Apr 23, 2009 3:36 pm

I am unsure what to do about the Phase 3 Alemtuzumab study. I have been approved for it, but have not yet done the Screening and Baseline visits. They made some changes to it on 3/5/09, and now I would have a 1 - 3 chance of being radomized into the Rebif group, when before it was 1 - 5.

I am almost 50 years old. Yikes, I've never seen that in print, if ...

**Posted:** Wed Mar 25, 2009 2:13 pm

I went into the Neuro's office today, 'cause I just can't get my legs to work right. They're super duper spastic and the dropped foot is way worse. The team was supportive, they gave me some different drugs to try for the spasticity and some oral steroids to see that if that didn't help me feel better and get walking better sooner. Tomorrow I have to go back to work so I was nervous about ...

**Posted:** Fri Mar 20, 2009 11:46 am

I detailed the experience @ www.myspace.com/chilliwacklove under my blog, it's public so read it if you're interested. The 3rd and final infusion was on Wednesday. Thursday I woke with the rash; and had my mom around all day in case I needed her. Really I just wanted to rest. Today another rash but it didn't return as fierce as usual, 4 hours after the last benadryl. I continue to ...

**Posted:** Thu Mar 19, 2009 9:03 am

Freiguy, if you happen to be checking in, I sent you a PM.

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