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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

CCSVI angioplasty procedure ok to do unless called research ... race/72033

The FDA could intervene in the cases of Arata and McGuckin because they were calling their procedures research, over which the agency has jurisdiction. However, the procedure can be done without federal scrutiny if there is no research involved. It is viewed as akin to the "off-label" use of a drug, in that the stent devices were approved for use in arteries, not veins.

Just one ...
Read more : CCSVI angioplasty procedure ok to do unless called research | Views : 209 | Replies : 0

Is Multiple Sclerosis Caused by the Jaw and Cranial Bones?

"Multiple Sclerosis (MS) is likely a biomechanical disease caused by the jaw muscles, cranial bones, and veins of the body. The autoimmune paradigm has produced no effective treatment after 70 years as the prevailing hypothesis on the cause of MS. With the MS drug market now over $20 billion a year, the status quo of MS research serves the interests of pharmaceutical companies, neurologists, and diagnostic imaging providers ...
Read more : Is Multiple Sclerosis Caused by the Jaw and Cranial Bones? | Views : 259 | Replies : 0

Chinese researchers on CCSVI April 2018

CNS Neurosci Ther. 2018 Apr 23. doi: 10.1111/cns.12859.
Understanding jugular venous outflow disturbance.

Zhou D1,2,3, Ding JY1,2,3, Ya JY1,2,3, Pan LQ1,2,3, Yan F2,3,4, Yang Q3,5, Ding YC3,6, Ji XM2,3,4, Meng R1,2,3.

Author information


Extracranial venous abnormalities, especially jugular venous outflow disturbance, were originally viewed as nonpathological phenomena due to a lack of realization and exploration of their feature and clinical significance. The etiology ...
Read more : Chinese researchers on CCSVI April 2018 | Views : 299 | Replies : 0

CCSVI and Colloidal

Does anyone know if it is safe to take "Colloidal Silver" (internally) after being diagnosed with CCSVI?
I have had angioplasty but it has been unsuccessful and I don't want to do any more damage than the m.s. is doing.
Will this cross the blood brain barrier and be harmful to my brain? Any help with this would be greatly appreciated as I am looking for alternative treatments for sinus infections, etc. I'd rather skip ...
Read more : CCSVI and Colloidal | Views : 427 | Replies : 6

Angiogenesis, fingolimod and ceramides

Recently I am finding some connections that I would like to share.

First of all, Fingolimod is a known active principle, an immune-modulator, which works theoretically modifying the behaviour of the Sphingosine-1-phosphate lipids, and in turn, the behaviour of b-cells and T-cells. But its action could be more than that.

The interesting connection is that Sphingosine-1-phosphate also modulates the Angiogenesis. Therefore a disregulated sphingosine system is expected to produce an unexpectedly wrong vascular system ( ...
Read more : Angiogenesis, fingolimod and ceramides | Views : 457 | Replies : 0

Recent article: CCSVI could work for only some patients

Chronic Cerebro-Spinal Venous Insufficiency in Multiple Sclerosis: Is It the End?

It was published the long awaited Italian clinical trial investigating the safety and efficacy of a venous percutaneous transluminal angioplasty (PTA) to treat patients with multiple sclerosis (MS). According to the authors, venous PTA has proven to be a safe but largely ineffective technique; the treatment cannot be recommended in patients with MS .

Anyone who read ...
Read more : Recent article: CCSVI could work for only some patients | Views : 490 | Replies : 1

CCSVI alive and well in Poland. Fascinating article.

This popped up on my now pretty scant CCSVI Google news alert, not much there these days just the usual big pharma media claptrap about all that went awry 5-10 years ago, pretty boring stuff with lots of generalities and few specifics and almost no science.

Anyways this piece was a refreshing traipse down some pretty innovative thinking, and practice. Not some Facebooky testimonial or the like. Here's the link: ...
Read more : CCSVI alive and well in Poland. Fascinating article. | Views : 644 | Replies : 3

Is CCSVI Atlanta legit???

CCSVI Atlanta claims to have a tech trained in the Zamboni method Doppler. I NEED to know if anyone has experience with this place. The technician is named Lanie Fleet.
My son is having serious issues and we have been searching for someone trained to perform a Doppler study on him.
Please reply if you know anything.
Read more : Is CCSVI Atlanta legit??? | Views : 728 | Replies : 6

Retroviruses under hypoxia. The missing link?

This article points out that endogenous retroviruses that are normally latent reactivate under hypoxia (bad blood flow) conditions. Could this explain the relationship between CCSVI and MS?

Investigation of Endogenous Retrovirus Sequences in the Neighborhood of Genes Up-regulated in a Neuroblastoma Model after Treatment with Hypoxia-Mimetic Cobalt Chloride

Human endogenous retroviruses (ERVs) have been found to be associated with different diseases, e.g., multiple sclerosis (MS). Most human ERVs ...
Read more : Retroviruses under hypoxia. The missing link? | Views : 573 | Replies : 0


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