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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Is Dr. Sclafani still around?

Have been trying to get ahold of him. Former patient question.

Last post I saw from him was a few months ago, but saw someone say they had the procedure from him fairly recently as well.

Hoping to see ... had sent him a PM.

If anyone could get ahold of him - it'd be much appreciated.
Read more : Is Dr. Sclafani still around? | Views : 475 | Replies : 4


TVAM and stem cells?

Would love to talk to someone who has had this procedure done recently about what it is and how it went. Has anyone here had it done in the last six months?
Read more : TVAM and stem cells? | Views : 318 | Replies : 2


Doppler ultrasound tests can be normalised

It is known that doppler ultrasound tests can yield different results according to the operator. This has been one of the problems leading to inconsistent results across the different tests.

Now there is a trend trying to normalise the tests:

Centralized and local color Doppler ultrasound reading agreement for diagnosis of the chronic cerebrospinal venous insufficiency in patients with Multiple Sclerosis.

https://www.ncbi.nlm.nih.gov/pubmed/28721810

BACKGROUND:

An impaired cerebrospinal venous drainage was ...
Read more : Doppler ultrasound tests can be normalised | Views : 379 | Replies : 0




jugular veins are 10% narrower in MS than controls

Source: https://link.springer.com/article/10.11 ... 017-0008-3

Background

Multiple sclerosis (MS) is a chronic disease of the central nervous system. As an association between MS and reduced cerebral venous blood drainage was hypothesised, our aim was to compare the size of the jugular foramina in patients with MS and in control subjects.

Results

The mean diameter of the right foramen in patients with MS (6.3 ± 1.6 mm) was 10% smaller than that of ...
Read more : jugular veins are 10% narrower in MS than controls | Views : 506 | Replies : 7


Jugular anomalies again (June 2017)

I had to put "again" together with the date, because would look otherwise like the old Zamboni reports.

Jugular Anomalies in Multiple Sclerosis Are Associated with Increased Collateral Venous Flow

http://www.ajnr.org/content/early/2017/05/25/ajnr.A5219

Some people can see it, some others cannot at all ... And by the way, we have a relationship with the gray matter damage. Maybe gray matter damage produces white matter damage, which produces NAWM, which produces an ...
Read more : Jugular anomalies again (June 2017) | Views : 374 | Replies : 0


Caution and Concerns - Minocycline and Antibiotics For MS

HI Friends please read
http://ccsviinms.blogspot.com.au/2017/0 ... e-and.html

Minocycline is believed to hamper reabsorption of cerebrospinal fluid in the brain, potentially creating intracranial hypertension and vision loss. In fact, doctors know about this side effect, and it has been well documented. For someone with already slowed venous flow and build-up of CSF (as a patient with CCSVI), this side effect could be even more harmful.

regards
seeva
Read more : Caution and Concerns - Minocycline and Antibiotics For MS | Views : 464 | Replies : 0


Upright MRI accepted as invention

Today I have found this. The date is 16 May. Though I don't know if to achieve the approval of an invention means anything about its efficacy.

http://www.freepatentsonline.com/9649047.html

Title:
Monitoring and treatment of multiple sclerosis
Document Type and Number:
United States Patent 9649047

Abstract:
The present invention relates to a method for monitoring the presence of, or the susceptibility to multiple sclerosis. The method may include obtaining measurements of ...
Read more : Upright MRI accepted as invention | Views : 505 | Replies : 2




Simvastatin trial linked to vascular system

Professor John Greenwood at the UCL Institute of Ophthalmology investigates the potential benefit of statins in auto-immune diseases and is following the current trial of statins in MS. He says:

"This study suggests, however, that the beneficial effect might be on vascular function rather than the immune system"

Source: https://www.theguardian.com/society/201 ... rch-statin
Read more : Simvastatin trial linked to vascular system | Views : 507 | Replies : 1


 

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