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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

They want so bad to discredit CCSVI that they support it

A book that you shouldn't read is this one:

http://onlinelibrary.wiley.com/doi/10.1 ... 3.297/full

To save you from loosing your time, I reproduce the abstract which says it all:

“Liberation treatment has no proven efficacy, may exacerbate underlying disease activity and has been complicated with SAEs"

But ....

If “Liberation treatment” can exacerbate MS, it is clear that MS is a vascular disease!!! They admit it.

I wonder if they will ...
Read more : They want so bad to discredit CCSVI that they support it | Views : 8 | Replies : 0


Testing??

Hi, for those who have been tested:

--If the IR finds stenoses in multiple veins will they all be treated??? (ie. subclavian, axillary, internal mammary...) not just IJV being treated.

--Will the IR look at other veins besides the usual suspects?

--If you were able to get insurance to help you with this cost, HOW did you do that?!?!
Read more : Testing?? | Views : 24 | Replies : 0


Cerebrovascular Reactivity

Chronically reduced Cerebrovascular Reactivity (CVR) is suspected to be the cause of neurodegeneration in MS, due to a chronic overabundance of NO, which habituates the blood vessels to being continuously expanded. The excess of NO is thought to be the result of inflammation making immune cells to release iNOS, which results in catalysis of NO. The NO overload could also result in energy loss. It may be competing with O2 absorption by mitochondria, with the ...
Read more : Cerebrovascular Reactivity | Views : 218 | Replies : 2


PubMed Commons

This is a good idea. Those authors who can get agreement with their publishers not to remain behind a paywall, can share their work here:

http://www.ncbi.nlm.nih.gov/pubmedcommons/

If a study has government funding it should belong to the people. Public libraries should have access. IMHO, it also is a grave necessity for science to progress, regardless of whether any drug companies or publishers can make profits from it.
Read more : PubMed Commons | Views : 194 | Replies : 0


Can IJV's and Azygous veins remain dilated after 3 balloon a

I have had 3 balloon angioplasty's in 2010 -2012,
On the 1st procedure they dilated just both IJVs
In the 2nd procedure they dilated both IJVs AND the Azygos vein
In the 3rd procedure they dont the same as the 2nd procedure

The 3rd MRV:
This new IR said he ballooned the veins more aggressively in hope i dont restenose,
he dilated the right IJV 'proximally until 10mm, distally until 18mm, the left jugular vein ...
Read more : Can IJV's and Azygous veins remain dilated after 3 balloon a | Views : 176 | Replies : 2


Iron supplements and MS dx

I hope I am posting this in the correct forum. Has there ever been conducted to ask how many patients Dx with MS have been on Iron Supplements at some point in life? Any light u can shed on this would be great. I have been searching for information to no avail, but findings on the effects of iron reduction therapy are rather interesting in patients with MS. Curious if supplements of iron have been ...
Read more : Iron supplements and MS dx | Views : 172 | Replies : 2


New Video at CCSVI Alliance - Physical Therapy

New video on homepage: Mr. Ray Crallé, nationally recognized physical therapist, covers the physiology and rehabilitation of two symptomatic challenges for people with MS – gait disturbance and balance. In this informative interview with Alliance President, Sharon Richardson, Mr Crallé discusses the physiology of spastic plantar flexion (incorrectly termed foot drop in many MS patients), vestibular balance (which can have an effect on cerebral blood flow) and the bio-mechanics of gait disturbance ...
Read more : New Video at CCSVI Alliance - Physical Therapy | Views : 290 | Replies : 2


information needed

First time here. My mother has MS. She has been laying in a corner room in a nursing home for 8 years and she is only 62. She cannot walk. She sees her neurologist once a year. I need information regarding how to get her ccsvi treatment. In our minds, it is worth any risk. She is very dear to me and has so much life ahead of her. I don't want to see her ...
Read more : information needed | Views : 271 | Replies : 7


Even the enemy can see the difference if they do things righ

We have again another report finding differences in blood flow but saying that they are the consequence. The most important contribution of these articles is that they show that flow differences really exists, and even the CCSVI-against doctors can find them.

http://www.ncbi.nlm.nih.gov/pubmed/25360597

Ultrasonographic Evaluation of Cerebral Arterial and Venous Haemodynamics in Multiple Sclerosis: A Case-Control Study.

Abstract
OBJECTIVE:
Although recent studies excluded an association between Chronic Cerebrospinal Venous Insufficiency ...
Read more : Even the enemy can see the difference if they do things righ | Views : 278 | Replies : 1


Happy Halloween

Did anyone dress up as a neurologist yesterday?
Read more : Happy Halloween | Views : 182 | Replies : 2


 

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