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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

information needed

First time here. My mother has MS. She has been laying in a corner room in a nursing home for 8 years and she is only 62. She cannot walk. She sees her neurologist once a year. I need information regarding how to get her ccsvi treatment. In our minds, it is worth any risk. She is very dear to me and has so much life ahead of her. I don't want to see her ...
Read more : information needed | Views : 340 | Replies : 7

Even the enemy can see the difference if they do things righ

We have again another report finding differences in blood flow but saying that they are the consequence. The most important contribution of these articles is that they show that flow differences really exists, and even the CCSVI-against doctors can find them.

Ultrasonographic Evaluation of Cerebral Arterial and Venous Haemodynamics in Multiple Sclerosis: A Case-Control Study.

Although recent studies excluded an association between Chronic Cerebrospinal Venous Insufficiency ...
Read more : Even the enemy can see the difference if they do things righ | Views : 318 | Replies : 1

Happy Halloween

Did anyone dress up as a neurologist yesterday?
Read more : Happy Halloween | Views : 211 | Replies : 2

Cortical veins under 7 tesla MRI

It seems that they are able to detect oxygen percentages and to use it as biomarker.

Edit: I had a bad link. This is the right one.

Quantitative oxygen extraction fraction from 7-Tesla MRI phase: reproducibility and application in multiple sclerosis.

Quantitative oxygen extraction fraction (OEF) in cortical veins was studied in patients with multiple sclerosis (MS) and healthy subjects via magnetic resonance imaging (MRI) phase images ...
Read more : Cortical veins under 7 tesla MRI | Views : 331 | Replies : 3

% definition of technical failure of vein angioplasty ... 140602297X

Primary patency was defined as a patent central vein without recurrent stenosis or the need for further intervention within the central veins. Assisted primary patency was defined as a patent central vein that underwent further intervention to improve patency. Loss of patency was defined according to accepted reporting standards.

Technical failure was defined as <50% gain in luminal diameter. Early failure was defined as an inability ...
Read more : % definition of technical failure of vein angioplasty | Views : 416 | Replies : 2

Questions - help!

Do any of you feel a pain in the front or sides of your neck? What the heck is that?!

Have you ever noticed that your symptoms are posture related? Any time I have to lean forward, especially w/arms out, symptoms flare afterward. This is: driving, pushing stroller, working on computer. What does this mean???
Read more : Questions - help! | Views : 345 | Replies : 2

Flow & anatomical abnormalities in MS vs Controls using MRI

Hello everyone,

I am delighted to present this work fresh off the presses. Within the paper lies clear differences in venous anatomy in the MS and HC samples, but most importantly in jugular flow between the two. Also elucidated are the pitfalls of the Rodger and Traboulsee studies. Specifically, using individual IJV flow and percent stenosis method, instead of total IJV (and normalized IJV flow to arterial flow) and using fixed area for determining stenosis. ...
Read more : Flow & anatomical abnormalities in MS vs Controls using MRI | Views : 1135 | Replies : 18

Muscle compression?


If one is found to have IVJ compressed by sternocleidomastoid or some other muscle, then what??? Is there a procedure to divide this muscle? Should be.
Read more : Muscle compression? | Views : 284 | Replies : 2


This article speaks about groups of patients that have succesfully managed to set up a clinical trial via crowdfunding.

Interestingly, they did it for MS.

Maybe it could be a possibility for us to do it for CCSVI
Read more : Crowdfunding. | Views : 522 | Replies : 0


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