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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

CCSVI Practices Suboptimal but Patients Don't Mind

http://www.medpagetoday.com/MeetingCove ... RIMS/46082

Some research on surveys done of Canadian patients who had the CCSVI procedure done via medical tourism. The data is primarily from 2010-2011 so it may be out of date with current standards. Still interesting.
Curiously, none had gone to Italy – even though Zamboni and his proteges there have established busy venoplasty programs for MS patients.

Well, that casts Zamboni in a poor light. No ...
Read more : CCSVI Practices Suboptimal but Patients Don't Mind | Views : 598 | Replies : 3


Interview with Dr. Zamboni ISNVD -pilot study on perfusion

Dr. Paolo Zamboni discusses his new pilot study which looks at perfusion changes in the multiple sclerosis (MS) brain prior to and after successful venoplasty for CCSVI, utilizing SPECT and PET scans. His team also compares cerebral perfusion in MS to normal controls. At the 2014 ISNVD conference
https://www.youtube.com/watch?v=6dl7ztBgkGw

it was wonderful to be able to sit down with Dr. Zamboni, to learn about the changes in perfusion his ...
Read more : Interview with Dr. Zamboni ISNVD -pilot study on perfusion | Views : 420 | Replies : 0


CCSVI Hydrostatic-Immune Paradigm

http://ccsvitalk.gr/blog/wp-content/upl ... al-1-2.pdf
Chronic Cerebrospinal Venous Insufficiency in Multiple Sclerosis: The
Hydrostatic-Immune Paradigm and the Flow Cytometry as a Diagnostic Tool
Abstract
In recent years, chronic cerebro-spinal venous insufficiency (CCSVI) has been associated with multiple sclerosis
(MS). Balloon angioplasty of the affected veins (internal jugulars, azygos) has been proposed as a treatment
method, with controversial results. The conflict is based on how a primarily immune disease can be affected ...
Read more : CCSVI Hydrostatic-Immune Paradigm | Views : 532 | Replies : 2


Claviculectomy for subclavian venous repair: Long-term funct

http://www.sciencedirect.com/science/ar ... 1400156630
Claviculectomy for subclavian venous repair: Long-term functional results

The purpose of this study was to determine the long-term functional results after medial claviculectomy and venous patch angioplasty or bypass grafting using internal jugular vein after incomplete thrombolysis of effort thrombosis of the subclavian vein.

They ligated the IJV, which drains the brain, to use it as a replacement vein for the subclavian vein, which drains ...
Read more : Claviculectomy for subclavian venous repair: Long-term funct | Views : 362 | Replies : 0


International Clinical Trials Day on Tuesday 20th May 2014

I am sure many of us are aware of the importance of scientific evidence provided by clinical trials. True science requires the results of all trials to be published. Yet many Pharmaceutics companies do not do so. If you have not already done so it would be helpful to sign the petition at

http://www.alltrials.net/

I hope I have inserted the url correctly. I probably haven't.
Read more : International Clinical Trials Day on Tuesday 20th May 2014 | Views : 498 | Replies : 3


Neurologist Dr. Hubbard discusses FDA approved registry

Neurologist Dr. David Hubbard reviews the history and the future of the FDA-approved Hubbard Patient Registry for the treatment of CCSVI. Recorded at the ISNVD 2014 Conference - San Francisco, by CCSVI Alliance--

http://www.ccsvi.org

cheer
Read more : Neurologist Dr. Hubbard discusses FDA approved registry | Views : 452 | Replies : 1


Endothelium & food

If you have, or have access to, the streaming movie & TV service with a name starting with an n and ending with an x, there is a film there which says some interesting things about food and endothelial health. What they say about chronic diseases, autoimmune diseases, heart failure and cancer is interesting too. This film is called Forks over Knives. Their blurb says:
"According to the research of two food scientists, the popularity ...
Read more : Endothelium & food | Views : 397 | Replies : 2


New--Treating CCSVI modifies endothelial dysfunction

Endovascular treatment of chronic cerebro spinal venous insufficiency in patients with multiple sclerosis modifies circulating markers of endothelial dysfunction and coagulation activation: a prospective study
http://journals.lww.com/bloodcoagulatio ... 99197.aspx

We performed a monocentric observational prospective study to evaluate coagulation activation and endothelial dysfunction parameters in patients with multiple sclerosis undergoing endovascular treatment for cerebro-spinal-venous insufficiency. Between February 2011 and July 2012, 144 endovascular procedures in 110 patients with multiple sclerosis ...
Read more : New--Treating CCSVI modifies endothelial dysfunction | Views : 439 | Replies : 3


TOS question

Haven't read up too much on it, but have a friend that was dx'd with a TOS variant involving subclavian vein compression from the costoclavicular ligament which lies between the first rib and clavicle. Myriad of CCSVI type symptoms and even into the spinal column. From what I've read it is correctable, just wondering what kind of specialist she should seek out. Ideas?
Thanks.
Mark
http://www.ncbi.nlm.nih.gov/m/pubmed/15768011/
Read more : TOS question | Views : 765 | Replies : 5


It worked for 3 mos then....

Then my vein got clogged again. Went 2 times to open it up again. Had pain, discomfort for 3 yrs with stents blocked. Got new vein ( from leg) last yr. No better, no worse.
Now going to StemGene for SCT in 2 Wks!
Read more : It worked for 3 mos then.... | Views : 467 | Replies : 0


 

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