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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

ISNVD Conference 2016

ISNVD 2016 Conference
Dear Colleagues,

At this time, we are pleased to announce that Registration and Hotel Booking links are now open for the 2016 ISNVD Annual Meeting in New York City. Additionally, abstract submissions are currently being accepted for competition.
The meeting will take place this coming April 29th and April 30th, 2016 in New York City at The New York Academy of Sciences located at 7 World ...
Read more : ISNVD Conference 2016 | Views : 730 | Replies : 0

Alternative Treatment/Therapies After Two Failed Treatments

Hello everyone,

I wanted to start this post because I was having trouble finding a thread that was dedicated to therapies yet to be tried for those who have already gone the route of the "Liberation" procedure.

In 2010, after being considered an MS patient but not having any lesions, I looked into Lyme disease which I was later diagnosed with. I hope you'll stick with me because I would receive two CCSVI Liberation angioplasties ...
Read more : Alternative Treatment/Therapies After Two Failed Treatments | Views : 651 | Replies : 1

How are the stents holding up?

Long time lurker, first time poster. I’ve been wondering how some of the people here who received stents some time ago have been doing? I remember reading about complications in some including Jeff Beal, Marie Rhodes, SammyJo, but can't find those posts right now and don't remember the nature of their issues. Did stents break? Did endothelium overgrow inside? Did they have thromboses? How are others’ stents holding up? My PCP says they only last ...
Read more : How are the stents holding up? | Views : 1521 | Replies : 16

Understanding Multiple Sclerosis

CCSVI is just one component of a more global, biomechanical disease process which we call MS. I have outlined a framework for understanding MS which incorporates a multitude of contributions from various sub-disciplines of medicine, including contributions related to CCSVI. Contributions from Schelling, Williams, and others have been included. Please read and consider. Do not hesitate to email me for help, that is what I am here for. ... ing_ms.pdf ...
Read more : Understanding Multiple Sclerosis | Views : 2114 | Replies : 32

ISNVD 2016-moving forward

ISNVD 2016 will be at the Academy of Sciences in New York City in April.
Keynote speaker will be Jonathan Kipnis---his lab discovered the brain's lymphatic vessels and immune system--which rely on veins for drainage.
Also, lots of international presentations on CCSVI clinical trials and registries.

This research is not quietly going away, it is growing in scope and influence, as more connections continue to be made between brain health, diseases of neurodegeneration, and the ...
Read more : ISNVD 2016-moving forward | Views : 1321 | Replies : 27

Poland or Bulgaria for CCSVI

Hello. I am in a dilemma. I could not choose which is better. Does anyone have an idea?

Poland : Maciej Zarębiński, MD, PhD --- AMEDS Poland

Bulgaria: PROF. LACHEZAR GROZDINSKI --- Sofia City Clinic
Read more : Poland or Bulgaria for CCSVI | Views : 608 | Replies : 1

cheerleader cited in scholarly paper

can be found in the references cited in the paper “Media, politics and science policy: MS and evidence from the CCSVI Trenches” by Daryl Pullman, Amy Zarzeczny and André Picard in BMC Medical Ethics 2013, 14:6 doi:10.1186/1472-6939-14-6
Published: 12 February 2013

I found it by following a tweet published in Macleans by Anne Kingston, which I found by following

Circular references, anyone?
Read more : cheerleader cited in scholarly paper | Views : 654 | Replies : 3

Study suggests MS not linked to CCSVI

A new study claims an abnormality in blood drainage from the brain, known as chronic cerebrospinal venous insufficiency (CCSVI), is not associated with multiple sclerosis (MS)...Read more -
Read more : Study suggests MS not linked to CCSVI | Views : 916 | Replies : 9

How does craniocervical mis-alignment affect fluid flow in C

CCSVI Alliance recently released an exclusive interview with Dr. Scott Rosa "How does craniocervical mis-alignment affect fluid flow in the CNS?"

Here is link to our Facebook announcement. Please note the ultrasound image of blood flow through the jugular vein pre and post Atlas Orthogonal alignment.

Interview topics:
Introduction and research history
Mis-alignment at craniocervical junction
Head-neck trauma
Cerebellar tonsillar ectopia (CTE)
Cerebrospinal fluid (CSF) obstruction
Neurodegenerative disease ...
Read more : How does craniocervical mis-alignment affect fluid flow in C | Views : 689 | Replies : 0

Review: The currently accepted MS models do not need Tcells


Although the precise mechanism of initial lesion development in multiple sclerosis (MS) remains unclear, two different neuropathological findings have been reported as a potential early pathology of MS: “microglial nodules” and “newly forming lesions”, both of which contain neither T cell infiltration nor demyelination.

In microglial nodules, damaged axons were associated with a small number of aggregated macrophages/microglia, while oligodendrocyte apoptosis was a characteristic in newly forming ...
Read more : Review: The currently accepted MS models do not need Tcells | Views : 661 | Replies : 0


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