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News News of Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

New FDA warning Mar. 8, 2017 against CCSVI procedure (TVAM)

FYI - This notice even showed up in my local news today, so I looked it up on the FDA's website:

https://www.fda.gov/MedicalDevices/Safe ... 545286.htm

It updates & supplements the previous FDA warning from 2012, and refers to Dr. Arata's letter of Sept. 2016.
Read more : New FDA warning Mar. 8, 2017 against CCSVI procedure (TVAM) | Views : 631 | Replies : 0


Apology needed from Cheerleader and Cece

Pre-CCSVI this site had a good vibe. There was some good banter and some good friendships were started (I met 3 TIMS members in the flesh). Then, like the so-called Islamic State, a vile wave swept through. The zealots made big claims and beheaded those who dared to question the cure they were pushing. The site changed from a friendly bunch to something quite nasty. Old-timers like me headed to new pastures. Now the chickens ...
Read more : Apology needed from Cheerleader and Cece | Views : 3904 | Replies : 54


Good results presented at SIR2017 for CCSVI in Menieres

http://www.ctvnews.ca/health/meniere-s- ... -1.3312503

He and his team have also performed angioplasty (percutaneous transluminal angioplasty, or PTA), on 105 of the patients, to open up key neck veins, called the azygos vein and the internal jugular vein. The procedure has been generally well tolerated by the patients, although some experienced bleeding and blood clotting.

Bruno reports that, among the patients treated with angioplasty, 85 per cent have reported a reduction ...
Read more : Good results presented at SIR2017 for CCSVI in Menieres | Views : 722 | Replies : 1


'Scientific quackery': UBC study (regarding CCSVI)

http://www.cbc.ca/news/health/multiple- ... -1.4014494



$5.5M federal-provincial research report tested vein-widening 'liberation therapy'

A new study at the University of British Columbia has produced a "definitive debunking" of a controversial procedure that surgically widens neck veins as a treatment for multiple sclerosis.


'Anybody who knew anything about MS knew the idea was nonsense from get-go.'
- Dr. Michael Rasminsky, McGill University (neurologist)

My thoughts... ANY procedure or protocol that helps some ...
Read more : 'Scientific quackery': UBC study (regarding CCSVI) | Views : 2148 | Replies : 33


Dr. Alireza Minagar

http://www.ctvnews.ca/health/study-find ... -1.3315927

Dr. Alireza Minagar, a U.S. neurologist who specializes in MS and teaches at Louisiana State University, says he has always been intrigued by the CCSVI theory and the idea that the venous system has been implicated as a possible cause. He thinks despite this study’s latest findings, the concept deserves further research.

“While still in its infancy, CCSVI poses an enormously complicated idea, which requires more ...
Read more : Dr. Alireza Minagar | Views : 510 | Replies : 1


ISNVD 2017 in Italy

Here is the program pdf:

http://isnvd.org/sites/default/files/IS ... 2017_1.pdf

Sesssion 3 13.30 – 14.30 - Annette Funicello Presentations

Chairs: Paolo Zamboni – Carol Schumacher

1. J. Winny Yun: ‘Neurolymphatics and MS’
2. Helen Kavounidas: Update on Australian CCSVI’
3. Robert Zivadinov – Follow up of AFRF
4. Marcella Lagana: ‘Phase contrast MRI measurement of arterial-venous-CSF flow
rates’
5. Nicole Ziliotto: ‘Exome sequencing and transcriptomic analysis in jugular wall for
detection ...
Read more : ISNVD 2017 in Italy | Views : 2846 | Replies : 31




UBC Canada CCSVI clinical trial results coming March 8th

https://www.facebook.com/CanadianNeurov ... NE&fref=nf
UBC CCSVI clinical trial results to be presented Wednesday, March 8, 2017 at SIR meeting in Washington DC:
A Multicenter Prospective Randomized Blinded Sham Controlled Trial Of Jugular Venoplasty In Multiple Sclerosis: Week 48 Result

Wed, 3/8/2017: 10:35 - 10:43 AM
Marriott Marquis Washington DC

Authors:
L Machan1, A Traboulsee2, D Klass2, B Hardy3
Institutions:
1University of British Columbia Hospital, 2University of British Columbia
3University of ...
Read more : UBC Canada CCSVI clinical trial results coming March 8th | Views : 770 | Replies : 3


Gladstone: $5.8M for brain/immune/vascular in Neuro diseases

This research seems very CCSVI related. Here's a few excerpts from the press release and a link to it. Bold type added by me:

https://gladstone.org/about-us/news/gladstone-investigator-receives-58m-grant-pioneering-research-neurological-disease

Gladstone Investigator Receives $5.8M Grant for Pioneering Research into Neurological Disease

Gladstone Senior Investigator Katerina Akassoglou, PhD, was awarded a prestigious multi-year, multi-million dollar grant from the National Institute of Neurological Disorders and Stroke (NINDS).

Akassoglou’s research focuses on the intersection of the brain, immune, and vascular systems. Her ...
Read more : Gladstone: $5.8M for brain/immune/vascular in Neuro diseases | Views : 513 | Replies : 1


Dr. Owiesy's Superior CCSVI-MS Solution

Previously published on my site MS Cure Enigmas. http://www.mscureenigmas.net/

"Just as I returned to work on my MSCureEnigmas blog after a 2 month “vacation”, the ThisisMS.com forum http://www.thisisms.com/ has provided me with the material to write this post. In particular Mark Miller of Los Angeles, AKA CureIous, paved the way by posting the following entry:

Re: Notes from CureIous at Stanford Feb 9, ...
Read more : Dr. Owiesy's Superior CCSVI-MS Solution | Views : 910 | Replies : 6


 

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