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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Neurologist Dr. Hubbard discusses FDA approved registry

Neurologist Dr. David Hubbard reviews the history and the future of the FDA-approved Hubbard Patient Registry for the treatment of CCSVI. Recorded at the ISNVD 2014 Conference - San Francisco, by CCSVI Alliance--

Read more : Neurologist Dr. Hubbard discusses FDA approved registry | Views : 434 | Replies : 1

Endothelium & food

If you have, or have access to, the streaming movie & TV service with a name starting with an n and ending with an x, there is a film there which says some interesting things about food and endothelial health. What they say about chronic diseases, autoimmune diseases, heart failure and cancer is interesting too. This film is called Forks over Knives. Their blurb says:
"According to the research of two food scientists, the popularity ...
Read more : Endothelium & food | Views : 389 | Replies : 2

New--Treating CCSVI modifies endothelial dysfunction

Endovascular treatment of chronic cerebro spinal venous insufficiency in patients with multiple sclerosis modifies circulating markers of endothelial dysfunction and coagulation activation: a prospective study ... 99197.aspx

We performed a monocentric observational prospective study to evaluate coagulation activation and endothelial dysfunction parameters in patients with multiple sclerosis undergoing endovascular treatment for cerebro-spinal-venous insufficiency. Between February 2011 and July 2012, 144 endovascular procedures in 110 patients with multiple sclerosis ...
Read more : New--Treating CCSVI modifies endothelial dysfunction | Views : 430 | Replies : 3

TOS question

Haven't read up too much on it, but have a friend that was dx'd with a TOS variant involving subclavian vein compression from the costoclavicular ligament which lies between the first rib and clavicle. Myriad of CCSVI type symptoms and even into the spinal column. From what I've read it is correctable, just wondering what kind of specialist she should seek out. Ideas?
Read more : TOS question | Views : 716 | Replies : 5

It worked for 3 mos then....

Then my vein got clogged again. Went 2 times to open it up again. Had pain, discomfort for 3 yrs with stents blocked. Got new vein ( from leg) last yr. No better, no worse.
Now going to StemGene for SCT in 2 Wks!
Read more : It worked for 3 mos then.... | Views : 458 | Replies : 0

renal denervation failed trial

There were comparisons to be made in the last few years between renal denervation and ccsvi venoplasty because they were two new endovascular procedures that had yet to be fully researched. Renal denervation seemed to be embraced by IRs to a greater extent than CCSVI venoplasty. I don't know if this failed trial will be the end of renal denervation, but it is a blow. If the comparison is the trajectory of a new endovascular ...
Read more : renal denervation failed trial | Views : 780 | Replies : 0

New research- UV rays, nitric oxide and MS symptom relief

The sun is free. No prescription needed.
10-15 minutes of sunshine or UVB phototherapy sends Treg cells flowing from the lymph nodes to sites of inflammation in people with MS. People with MS had symptom relief in a study completed by German neurologists and published last week.

Regulatory T cells (Tregs), which are induced locally in the skin-draining lymph nodes in response to UVB exposure, connect the cutaneous immune response to CNS immunity by migration ...
Read more : New research- UV rays, nitric oxide and MS symptom relief | Views : 1817 | Replies : 24

Follow up ultrasounds

I had my CCSVI procedure done by Dr. Sclafani in Brooklyn. I loved him & his wonderful staff. I had my first follow up ultrasound at his office. :-D

After that, I wanted someone closer to where I live (California) to do my ultrasound re-checks. I tried a certain Newport Beach CCSVI practitioner's office, & was VERY disappointed. The Dr. inserted himself, when he knew I ...
Read more : Follow up ultrasounds | Views : 352 | Replies : 2

The Driscoll Theory explains all of my health problems

I've been diagnosed with MS, CCSVI, POTS, IBS, Fibromyalgia, Chiari, Degenerative Disc Disease, RA, Hashimoto's Thyroiditis, Endometriosis, and Scoliosis. I've been treated for CCSVI successfully and I receive Atlas Orthogonal adjustments on a regular basis. Both of these have resolved the hypo perfusion in my CNS. Many of my symptoms have been resolved or at least have improved. I've had no progression of my MS since my first CCSVI treatment in 2009.
My doctor and ...
Read more : The Driscoll Theory explains all of my health problems | Views : 1078 | Replies : 10

CCSVI, MS, and Decompression Sickness

Well, is you asked me this morning what I was going to do this afternoon, joining an MS forum and learning about CCSVI was not in the plan.

I'm not really sure where to start in this discussion, so I figure I will through my story out there and collect the hive-mind's thoughts.

I was a scuba diver until November of 2012 when I had a serious "hit" of decompression sickness. It was "undeserved" in ...
Read more : CCSVI, MS, and Decompression Sickness | Views : 612 | Replies : 5


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