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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Follow up ultrasounds

I had my CCSVI procedure done by Dr. Sclafani in Brooklyn. I loved him & his wonderful staff. I had my first follow up ultrasound at his office. :-D

After that, I wanted someone closer to where I live (California) to do my ultrasound re-checks. I tried a certain Newport Beach CCSVI practitioner's office, & was VERY disappointed. The Dr. inserted himself, when he knew I ...
Read more : Follow up ultrasounds | Views : 365 | Replies : 2


The Driscoll Theory explains all of my health problems

I've been diagnosed with MS, CCSVI, POTS, IBS, Fibromyalgia, Chiari, Degenerative Disc Disease, RA, Hashimoto's Thyroiditis, Endometriosis, and Scoliosis. I've been treated for CCSVI successfully and I receive Atlas Orthogonal adjustments on a regular basis. Both of these have resolved the hypo perfusion in my CNS. Many of my symptoms have been resolved or at least have improved. I've had no progression of my MS since my first CCSVI treatment in 2009.
My doctor and ...
Read more : The Driscoll Theory explains all of my health problems | Views : 1165 | Replies : 10


CCSVI, MS, and Decompression Sickness

Well, is you asked me this morning what I was going to do this afternoon, joining an MS forum and learning about CCSVI was not in the plan.

I'm not really sure where to start in this discussion, so I figure I will through my story out there and collect the hive-mind's thoughts.

I was a scuba diver until November of 2012 when I had a serious "hit" of decompression sickness. It was "undeserved" in ...
Read more : CCSVI, MS, and Decompression Sickness | Views : 722 | Replies : 5


Long term results

Hi I haven't been reading on here very much for quite awhile. I know of a few people locally that have had the procedure done with having some success with feeling better but it didn't last. In both cases they say that they feel worse now than they did before they went for the procedure. I really don't know everything about their cases but am curious if there are a high percentage of people that ...
Read more : Long term results | Views : 1779 | Replies : 18


Good news: Improvements reported finally in an article

I could put it into research, but I think is worthy to give this extra visibility.


Bilateral Surgical Reconstruction for Internal Jugular Veins Disease in Patients With Chronic Cerebrospinal Venous Insufficiency and associated Multiple Sclerosis.

Source: http://www.ncbi.nlm.nih.gov/pubmed/24704584

Abstract
Chronic cerebrospinal venous insufficiency (CCSVI) is a vascular condition characterized by morphological alterations involving efferent cerebral vascular paths. CCSVI has been implicated as a contributing factor to multiple sclerosis (MS) but ...
Read more : Good news: Improvements reported finally in an article | Views : 648 | Replies : 1


Computational haemodynamics in stenotic IJVs

This was posted today on Facebook:
http://www.ncbi.nlm.nih.gov/m/pubmed/24671429/
Computational haemodynamics in stenotic internal jugular veins.

Authors Caiazzo A, et al.
J Math Biol. 2014 Mar 27.

Affiliation
Abstract
An association of stenotic internal jugular veins (IJVs) to anomalous cerebral venous hemodynamics and Multiple Sclerosis has been recently hypothesized. In this work, we set up a computational framework to assess the relevance of IJV stenoses through numerical ...
Read more : Computational haemodynamics in stenotic IJVs | Views : 448 | Replies : 2


Ginger for vasodilation

I was wondering if anyone has tried using ginger for its vasodilation activity? I was taking 1 tsp per day for a couple of weeks, but had to cut back to ½ tsp since I started getting bloody noses. It helps me feel a little more energetic and alert.

Anti-Platelet Aggregation and Vasorelaxing Effects of the Constituents of the Rhizomes of Zingiber officinale
Molecules. 2012 Jul 26;17(8):8928-37

    In the present study, the chemical investigation of ...
Read more : Ginger for vasodilation | Views : 764 | Replies : 0


IJV Blood Flow Linked to Disability

Hi all

Came across this study of 58 people with MS and 13 healthy controls that found an association between IJV blood flow (wash out rate) and disability levels.

Internal Jugular Vein Blood Flow in Multiple Sclerosis Patients and Matched Controls (full article available) From the abstract:
A significant correlation was found between Internal Jugular Vein wash-out and level of disability (R = −0.402, p<0.05).

From the article itself:
In conclusion, these results suggest that ...
Read more : IJV Blood Flow Linked to Disability | Views : 539 | Replies : 0


new research: short bursts of exercise improve MS fatigue

http://msj.sagepub.com/content/early/20 ... 4.abstract
Pragmatic intervention for increasing self-directed exercise behaviour and improving important health outcomes in people with multiple sclerosis: a randomised controlled trial

Abstract


Background: Exercise programmes that can demonstrate evidence of long-lasting clinical effectiveness are needed for people with multiple sclerosis (PwMS).


Objective: The objective of this study was to assess the effects of a practically implemented exercise programme on self-directed exercise behaviour and important health outcomes ...
Read more : new research: short bursts of exercise improve MS fatigue | Views : 516 | Replies : 2


Ccsvi in Europe

Hi everyone I'm looking for some advice in relation to ccsvi. I'm looking to get the Doppler test I live in Ireland yet I cannot find anywhere in Ireland that will test me. Does anyone know if the clinic in Scotland is still carrying out the procedure. I am aware of the treatment in Poland it's just I would like to know if I needed the procedure before I head over to Poland. I'm very ...
Read more : Ccsvi in Europe | Views : 471 | Replies : 0


 

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