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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

CCSVI and pre-existing damage

I see everyone is all excited about this CCSVI and you all should be I on the other hand have some reservations about it being a "cure." I have been living with MS for 27 years and yes I am still high functioning but I still have questions: For those of us that have had MS for an extended period of time and know there is pre-existing damage to our nerves already, how are they ...
Read more : CCSVI and pre-existing damage | Views : 1940 | Replies : 4


Turned down at Stanford

Despite having MS for 35 years with all the corresponding symptoms, Dr. Dake did the test (MRV) and found NO blockage. No stents were placed. no relief of symptoms. I have no blocked veins. I cried all the way back from Standford.
Read more : Turned down at Stanford | Views : 2843 | Replies : 15


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Read more : 123 | Views : 4932 | Replies : 36


to the critics

Hi,

I am sure there are lot of Dr critics out there on CCSVI.
I think one question they need to ask is if one of the medicine that is used to "treat" MS were to show the same results as liberation procedure has done, would they be criticizing the treatment. Probably not ... the person who found that medicine would be preparing for Nobel speech ... so give credit when evidence is so clear ...
Read more : to the critics | Views : 1254 | Replies : 3


Question only for ladies!

Couple of women asked me how to manage our every month little problem during the procedure and the night after.

I have not been thinking about that as I and my gynecologist stopped the problem last May.
Since I was 12 every month first 3-4 days were just nightmare. I had extremely strong pain. My Ms alwas got worse during these days. It was better again after one week.
So I get now every 12 ...
Read more : Question only for ladies! | Views : 1665 | Replies : 5


The BBC have covered the story too..

http://news.bbc.co.uk/1/hi/health/8374980.stm


PS Thanks, Cheerleader, for your reply to my last post in this forum.
Read more : The BBC have covered the story too.. | Views : 1304 | Replies : 0


FCSC in Vancouver doing the MR imaging

Hi All,
Newbie here, (lurking for a while ;) but very excited with all of the new info on CCSVI.
Just got off the phone with the MR Dept at False Creek Surgical Centre in Vancouver BC Canada and they will do the MR imaging of veins of the head and neck (with the serum creatinine blood work for the contrast media) with a requsition from your ...
Read more : FCSC in Vancouver doing the MR imaging | Views : 9066 | Replies : 47


What are the tests to ask for & is there a place in Toro

Hi there,

I'm new to the forum and somewhat new to the CCSVI shtuff and I'd like some help please. I spoke with my GP today and told her I wanted to see a circulatory specialist so they could do or order the appropriate tests, I believe they're a doppler ultrasound and an MRV?MRI??? I'm a little lost... I live in Toronto, ON, Canada and would like to know if there's a doctor here & ...
Read more : What are the tests to ask for & is there a place in Toro | Views : 1413 | Replies : 3


Email from Yves Savoie MS Society of Canada president

As I've donated to the MS Society of Canada in the past I got a general update email from them this afternoon. Take a look at the PS! I added the website link but it was embedded in the actual email.


Thanks to support from coast-to-coast, we were able to reach 97 percent of Members of Parliament in June 2009 and let them know what is needed to improve incomes for people affected by MS ...
Read more : Email from Yves Savoie MS Society of Canada president | Views : 1523 | Replies : 0


A Logo and a Name for us

Discussed in the "Marketing"-Thread ( http://www.thisisms.com/ftopict-8532.html ), there's some evidence (though preliminary :wink: ) that the CCSVI movement could use a logo. It really looks like there's some sort of new organisation forming! So I made some attempts but wasn't satisfied with it myself. Now I've finished it.

But my thoughts were, there also should be a name to the movement ...
Read more : A Logo and a Name for us | Views : 1499 | Replies : 7


 

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