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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Paying for CCSVI

H, I'm new on here but was wondering if it is possible to go to Europe and be investigated and treated for the ccsvi? If so where do you go and who to see. Is it Poland?

Thankyou 8O
Read more : Paying for CCSVI | Views : 1617 | Replies : 4

Michelle Obama's father had MS

How can we make Michelle Obama aware of CCSVI and Multiple Sclerosis. What a wonderful spokesperson she would be if she would support this theory !! I don't know how to contact a First Lady.

Michelle Obama’s father was diagnosed with MS in his 30s and lived with the disease for much of her life. President Obama witnessed firsthand, as well, the effects that Multiple Sclerosis can have on a family.
Read more : Michelle Obama's father had MS | Views : 2400 | Replies : 12

Medicare/Medicare Advantage

I'm so glad to discover this community of people reaching out to help each other. Thank you for your time and efforts. I've been searching to see if any of you have experience with Medicare or Medicare Advantage paying for the tests anywhere in the US or the surgery at Stanford. I haven't seen anything in the forum so far. So if you have, please post.
Read more : Medicare/Medicare Advantage | Views : 1285 | Replies : 1

How do I approach a GP in the UK?

Hi Everyone,

I'm following all your stories with great interest and I'm wishing all of those who have had the Liberation procedure or who are embarking on the scans: best wishes, speedy recovery and I pray for many improvements in the coming months.

I'm in quite a lucky situation I suppose as my fathers best friend is a Consultant Vascular Surgeon and Director of Surgery.

He has really taken this on board and fully supports ...
Read more : How do I approach a GP in the UK? | Views : 1354 | Replies : 3

How to get Dr. Haake's MRI writeup?

My wife is seeing her neuro this Tuesday, and we'd like to give her Dr. Haake's write up on how to properly do an MRI/MRV. As people may know, Dr Haake's MS-MRI website is now shut down (due to overload?). How can we get a copy of the technical instructions?
Another question - was this write up to pick up iron deposits AND blockage or just iron deposits?
One more question - how do you ...
Read more : How to get Dr. Haake's MRI writeup? | Views : 2377 | Replies : 3

Where do you go to get tested for CCSVI?

I am very interested in the CCSVI theory. Where do you go to get tested for this - your family doctor or your neurologist to refer you? Also, can you get tested through ultrasound only or do you need an MRI?
Read more : Where do you go to get tested for CCSVI? | Views : 1316 | Replies : 0

other forums?

Just curious if other TIMS members also post on other forums (I mostly lurk neurotalk and braintalk, can't seem to get with msworld though). I've noticed some absurd ideas being thrown around re:CCSVI. The latest one that was mentioned lately on another forum-- That only Zamboni is finding 100% of MSers with CCSVI, that small studies have only found CCSVI in only 10% of MSers. Whaaat?? I just wish people would, at the very least, ...
Read more : other forums? | Views : 1435 | Replies : 2

Hope this isn't too personal, but how are people paying for

...this procedure?

...I'm new here and trying to read everything in one four-day weekend 8O !!

... The thing I don't seem to see in many posts is how folks are paying for this procedure at Dr. Dake's. I guess my real question is, has anyone been successful having his/her HMO insurance cover this?

...Sorry to be so upfront.

Thanks for your help,
Lisa G
Read more : Hope this isn't too personal, but how are people paying for | Views : 1405 | Replies : 2

In Honor of Jeff and Joan

On an earlier post, Joan (cheerleader) informed us that Jeff did the music for tonight's "A Dog Named Christmas" on the Hallmark Hall of Fame. The time is 9ET/8CT on CBS television. My husband and I are going to watch this show in honor of Joan and Jeff. It makes me happy that they have done so much for people with MS, and I am waiting to hear the music !!

For people who are ...
Read more : In Honor of Jeff and Joan | Views : 1651 | Replies : 3

Dr. Dake--Stint only?

Hello everyone. Thank you for answering my newbie questions. Your site and insights are all very helpful to me.

Question: Am I correct in assuming from what I've read that Dr. Dake is only doing stints with angioplasty and not just angioplasty alone?
Read more : Dr. Dake--Stint only? | Views : 1283 | Replies : 0


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